How are you feeling today – honestly? In December, PatientsLikeMe launched a new feature called InstantMe. It’s designed to allow you to chart how you are feeling day in and day out. Is today a bad day? Record it on InstantMe (found on your profile), and if you’d like, add a note explaining what’s going […]
Share and Compare: What Have You Learned with InstantMe? Read More »
In a recent series on patient choices, we’ve highlighted a lot of the decisions patients like you have to make on a daily basis. A few weeks ago, David S. Williams kicked off the series with a blog about the treatment and career decisions that patients like you, and his mother, have made. Kate Brigham
Patient Choices: The Deciding Factors Read More »
At PatientsLikeMe, we have a Privacy Policy that explains what we do with the health data that patients like you share. But as many of you know, we also have an Openness Philosophy, which outlines what we believe are the substantial benefits of being open versus private about your condition. Here’s an excerpt: “Currently, most
Patient Choices: How Open Are You Now? Read More »
In these days of Facebook and Twitter, the media is abuzz with news of “over sharing” of sensitive, personal or trivial information – everything from your current location to what you were up to over the weekend. Members on our site may choose to share some of this, but what about some of the less
Patient Choices: The Shape of Sharing Read More »
As David Williams discussed in his blog on Monday, we all have to make choices. And for patients like you living with serious medical conditions, there are obvious treatment and career decisions that you have to make—finding the right doctor, deciding which treatment options to try and determining if it’s still possible for you to
The Social and Emotional Choices You Make Every Day as a Patient Read More »
Patients like you with life-changing conditions have to make choices every day, just like anyone else. These choices, however, typically have more at stake than how to RSVP to a party or even whether to walk away from an “underwater” home. For patients like you, your lives may be at stake. I have watched my
The Choices Patients Like You – and Like My Mother – Face Read More »
At PatientsLikeMe, we strive to put the interests of you, the patient, first in everything we do. After all, you are the customers of the healthcare industry, and you deserve to have a say about the products and services created for you. Unfortunately, your needs and opinions often haven’t had the influence on the decision-making
Treat us right: Comparing Cymbalta and Lyrica in the fibromyalgia community Read More »
The launch of a new medication can be a very exciting event. It can renew hope for a better future and provide proof of the billions spent on research every year. It can also stimulate a lot of interesting conversation. Or not. We’ve learned from you that not every new medication warrants your attention and
Share and Compare: The Launch of Two Medications Read More »
With more than 82,000 patients on PatientsLikeMe, there’s a lot of information being shared with one another. Last month, we highlighted how your sharing affects the experience of many on our site (One For All series). Today, we continue that theme by taking a look at information being shared across all of our communities that
One for All: A Cross View of Patient Sharing Read More »
In the spirit of the New Year, here are some highlights from our recent newsletter. Read what patients like you have to say about what they’re most interested in learning from other patients this year. * * * (Amy) What are you most interested in learning from other patients this year? (bradley25 – Mood Conditions
Learning from Others: Newsletter Highlights 2011 Read More »
