Fundraising for a health-related charity walk/run? Get sponsored by PatientsLikeMe!

Posted 3 days ago by

Looking for ideas for raising more money for an upcoming cancer walk, MS bike ride, or other health-related charity event where you’ll be hitting the streets? Learn more about PatientsLikeMeInMotion! It’s a program that sponsors you and your team as you walk, run, cycle (etc.) with a nonprofit organization to raise funds and awareness for your disease or health condition (psst—PatientsLikeMe gear included). Read on!

PatientsLikeMeInMotion has grown a lot since we launched it back in 2009! Members have raised funds for cancer, multiple sclerosis, ALS, epilepsy, kidney disease, psoriasis, mental health and more (just take a peek at our Pinterest board).

In 2017, 89 members and their teams (with a total of nearly 2,000 participants) raised awareness and over $14,000 for their diseases.

In the first half of 2018, 73 members from 24 states and their teams have already participated and raised more than $18,000.

Interested in sponsorship by PatientsLikeMe? Here’s how to apply:

  1. Join PatientsLikeMe (membership is free)!
  2. Make sure your profile is up-to-date.
  3. Submit a request with your team and event details, including your preference of spiffy T-shirts or PatientsLikeMe hats (like the one above). We’ll confirm the details and you’ll be on your way. (See the full guidelines here to learn more.)

Past participants, inspire others. If you’ve been a part of PatientsLikeMeInMotion, feel free to post a picture in the forum (and on social media along with the tag #MembersInMotion)!

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Why is dietary advice so all over the place? Nutrition experts explain

Posted 6 days ago by

If you’re confused about what kind of milk to drink, what type of cooking oil is “healthiest” or whether the Mediterranean diet is the ticket to heart health, you’re not alone. Nutrition experts dig into the complexity of dietary research.

Digesting dietary advice

The constant churn of nutrition news, books and blog posts — combined with the growing number of food options at the grocery store — can feel contradictory and make your head spin when it comes to making healthy diet decisions.

“As a dietitian, even I get tripped up when new studies that come out that question my beliefs,” Washington Post writer Cara Rosenbloom admits in a recent article on “how to handle ever-changing nutrition science.” She interviewed Dariush Mozzafarian, the cardiologist and researcher behind this 2018 BMJ analysis of nutrition science.

They make the case that we have an issue with how we “digest” food advice:

  • We take it very personally. “If you learn in physics that there was new research about a black hole, you may say, ‘Oh, that’s interesting,’ but you don’t change your habits because the science has changed,” Mozaffarian says. But people these days tend to swiftly avoid or adopt foods (such as wheat/gluten or coconut oil) based on new information or faddish magazine reports that may not warrant dietary changes.
  • We cling to every new study. New nutrition research comes out weekly but people (and policymakers) would be wise not to focus on single studies, Mozaffarian argues. Understanding the relationship between foods, wellness and disease takes a long time.
  • We don’t have centralized government guidelines. The U.S. Department of Agriculture (USDA), the Food and Drug Administration (FDA) and the Department of Health and Human Services (HHS) are just a few sources of government recommendations on nutrition. Mozaffarian says a cabinet-level position that centralizes or coordinates nutrition guidelines would help eliminate confusion.

Other issues + pointers

Other nutritionists point out that dietary science is still in its infancy (see this infographic), and most nutrition studies are observational (rather than randomized control trials, which offer more evidence about “X may cause Y or Z”).

Researchers behind a major study on the Mediterranean diet and heart health recently had to retract and re-analyze their work because it was flawed (although version 2.0 reached the same conclusion — the Mediterranean diet can be beneficial for those with cardiac risks).

Even if you’ve figured out your own eating plan or nutrition philosophy (like Michael Pollan’s famous one: “Eat food. Not too much. Mostly plants.”), articles about diet still make great clickbait. Look for pieces that ask questions and cite research and credentialed nutrition experts, rather than making blind declarations or heavily promoting certain products. And always check with your own doctor or care team before making dietary changes or even taking new vitamins or supplements.

Do you follow a certain eating plan or style? What do you struggle with most when it comes to eating (or understanding nutrition advice)? Join PatientsLikeMe or log in to connect with the community in this forum discussion. As a member, you can also add any supplements or diet types (such as Mediterranean or low-carb/high-protein) to your profile (under the “My Health” tab) to assess them and track a more complete picture of your health.

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