Share and Compare: What Have You Learned with InstantMe?

Posted March 9th, 2011 by

How are you feeling today – honestly?

instantme-choices

In December, PatientsLikeMe launched a new feature called InstantMe. It’s designed to allow you to chart how you are feeling day in and day out. Is today a bad day? Record it on InstantMe (found on your profile), and if you’d like, add a note explaining what’s going on.

With InstantMe, patients like you are able to learn about your day-to-day fluctuations in response to your symptoms, treatments and many other things, such as family stress or work issues. More than 13,000 of you have been using InstantMe for a little over three months.

So, what have you gleaned from it so far? Here’s a sampling of the feedback you’ve shared.

  • I really like Instant Me because I see that I am feeling better than I thought and noticed the weather really has an effect on me.
  • I’m more aware of the changes that have occurred since I had the CCSVI procedure. And using this new InstantMe has let me chart this almost on a daily basis.
  • I can record when and why I feel the way I do, like if I am trying a new supplement and such, or forgot to take my vitamins, or if my teen was home all week.
  • My neuro asked that I keep a diary of my issues and when PatientsLikeMe started InstantMe, that was a perfect format. This allowed me to track day to day changes in pain levels and V/S steroid input.
  • One thing I have noticed is that that feeling of being more run down at the end of the week is NOT my imagination. I also am curious to see what times of day are my “best” times to do mental activities.

What about you? We’d love to hear what you’ve learned from answering the question “How are you feeling?” on a regular basis.

PatientsLikeMe member emorgan


One Comment

  1. I am new and although I forget to access instant me every day, I am finding it extremely useful to build my mood vs pain profile. Curently undergoing ECT I will be able to map the sucess rate.
    I love instant me as the more I use it the more helpful it becomes in mapping my constant pain with its peaks.

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