Fibromyalgia

Cannabidiol (CBD) oil and product FAQs: Fad or effective? Legal or not?

10 Comments / ALS, Conditions, Depression, Epilepsy, Fibromyalgia, Parkinson's Disease, Patient Experiences, PTSD, Research / By

Trending: Cannabidiol (CBD) oil, gummies, tinctures and more. Why are cannabis products gaining popularity as medical treatments and in general? As more states have legalized medical marijuana, more people have shifted their views on cannabis treatments (like former Speaker of the House John Boehner’s recent change of heart). And last month, an advisory panel at the U.S. Food and […]

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Defining “good” health care: 2 new studies reveal patient perspectives

2 Comments / Conditions, Depression, Fibromyalgia, Patient Experiences, PTSD, Research / By

Do you feel you’re getting the best possible care from your doctor? In two recent studies, PatientsLikeMe members answered this question and shared their perspectives on the health care they’re receiving. The results show that while patient opinions about care and provider performance vary according to condition, diverse patient groups agree on the top factors that define

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“What do you mean I can’t bring my service animal in?” Member Craig talks life with fibromyalgia and service dogs.

Conditions, Fibromyalgia, Patient Experiences / By

Craig Braquet (woofhound) is living with fibromyalgia and severe degenerative disc disease, the result of a multi-car accident in 1979. We first introduced Craig when he joined the 2015-2016 PatientsLikeMe Team of Advisors, but today we introduce his dogs, Luna, Oliver and Dakota (check out their cameo in Craig’s recent #MoreThan video). See what Craig has to

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Meet Lindsay from the PatientsLikeMe Team of Advisors

7 Comments / Bipolar disorder, Conditions, Diabetes, Fibromyalgia, Patient Experiences / By

  Meet Lindsay (Shyandspicy), a member of the PatientsLikeMe 2016-2017 Team of Advisors living with bipolar II, fibromyalgia and diabetes. We recently caught up with Lindsay to learn how she finds purpose in her relationships with her family, her faith and helping others.  Keep reading to get to know her story and how she tackles

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PatientsLikeMe Welcomes Next Patient Team of Advisors

ALS, Bipolar disorder, Conditions, Epilepsy, Fibromyalgia, Idiopathic Pulmonary Fibrosis, Multiple Sclerosis, Parkinson's Disease, Patient Experiences, Pulmonary fibrosis / By

  CAMBRIDGE, Mass, November 14, 2016—PatientsLikeMe has named 11 members to its patients-only 2016–2017 Team of Advisors, which this year will focus on elevating the patient voice. Team members will share their stories, participate in community initiatives, and give real world perspectives to our industry and research partners. “Each year, our Team of Advisors has proven

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Patients as Partners: Doug on learning about himself through others

1 Comment / Depression, Fibromyalgia / By

Next up in our Partnership Principles series is Team of Advisors member Doug (ducksixty). A writer and former actor, Doug tapped into his creative side and has shared a personal essay about Steve, a neighbor with fibromyalgia who unknowingly helped him realize something about his own experience with depression. Check out his story below and

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Patients as Partners: An open letter from Craig to the “normals”

3 Comments / Conditions, Fibromyalgia, Patient Experiences / By

We’ve been hearing from members of the Team of Advisors about how they’ve used the Partnership Principles in their health journeys. For Craig (woofhound), who’s living with fibromyalgia, it’s important to forge strong relationships with “normals,” or people who don’t know what it’s like to live with a chronic condition. By talking openly about illness, Craig believes,

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Meet Craig from the PatientsLikeMe Team of Advisors

1 Comment / Conditions, Fibromyalgia, Patient Experiences / By

We recently sat down with Craig, one of your 2015-2016 PatientsLikeMe Team of Advisors. Craig is living with fibromyalgia and severe degenerative disc disease, the result of a serious car accident in 1978. Craig is active on PatientsLikeMe and other online communities, where he adds his voice to discussions about chronic pain, healthy living and

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