Epilepsy Archives

Aligning Interests: A PatientsLikeMe Year in Review (Part VII – Business Development)

1 Comment / ALS, Epilepsy, Fibromyalgia, HIV/AIDS, Mental Health, Multiple Sclerosis, Organ Transplants, Parkinson's Disease, Patient Experiences, Rare Diseases / By patientslikeme

2010 was a strong year for business development at PatientsLikeMe. Our goal was – and continues to be – to align patients’ needs with industry interests in order to maximize interaction between the two. Here are a few of our successes and challenges over the year. Successes 1. New Partnerships, New Communities In the first […]

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Rising Together: A PatientsLikeMe Year in Review (Part VI: Nonprofit Partnerships)

1 Comment / ALS, Chronic Fatigue Syndrome, Epilepsy, Fibromyalgia, HIV/AIDS, Mental Health, Multiple Sclerosis, Organ Transplants, Parkinson's Disease, Patient Experiences, Rare Diseases / By patientslikeme

Why does it feel like “second nature” for PatientsLikeMe to create innovative partnerships with nonprofits? Nonprofit organizations are dedicated and centered around putting patients first – a concept that’s near and dear to us too. In 2010, we focused on refining our nonprofit partnerships to bring more events and programs to patients, both online and

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Tell The World: A PatientsLikeMe Year in Review (Part V – Marketing)

2 Comments / ALS, Chronic Fatigue Syndrome, Epilepsy, Fibromyalgia, HIV/AIDS, Mental Health, Multiple Sclerosis, Organ Transplants, Parkinson's Disease, Rare Diseases / By patientslikeme

With every new member at PatientsLikeMe, there is more data generated for research, more dialogue about individual experiences, and a more expansive support network. Additionally, with more patients we can become the world’s largest and loudest representative of the patient voice. To that end, our job in marketing is to share your stories and tell

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Tech Talk: A PatientsLikeMe Year in Review (Part IV – Tech)

ALS, Chronic Fatigue Syndrome, Epilepsy, Fibromyalgia, HIV/AIDS, Mental Health, Multiple Sclerosis, Organ Transplants, Parkinson's Disease, Patient Experiences, Rare Diseases / By patientslikeme

The PatientsLikeMe engineering team is excited to highlight some of the work that went on behind the scenes in 2010 to make this site what it is today. We tend to write more specifically about our work on a separate blog (http://tech.patientslikeme.com), so feel free to follow our work there as well. In addition to

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Share and Compare: A PatientsLikeMe Year in Review (Part II – R&D)

Epilepsy, Fibromyalgia, Mental Health, Organ Transplants, Patient Experiences, Research / By patientslikeme

The PatientsLikeMe research and development (R&D) team is excited about what we can all share and learn in 2011. Here’s a look back at some of what patients like you shared with us, and what we then shared with the world, in 2010. The R&D team published and presented some unprecedented insights based on what

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One for All: A PatientsLikeMe Year in Review (Part 1)

Thanks everyone for a great 2010. As we kick off the New Year, PatientsLikeMe would like to take a quick look back at the road we’ve traveled together this year. We think of all these improvements as laying the groundwork for even more exciting changes to come in 2011. At the start of 2010, we

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Overcoming Obstacles – Newsletter Highlight 2010

Last week, we posted highlights from our December community newsletter interviews. As we close out 2010, we want to spotlight another question asked this month – one that is relative to all members, all patients (no matter the condition). What obstacles have you faced and overcome this year? To review all of our newsletters, you

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Happy Holidays from PatientsLikeMe

PatientsLikeMe wants to wish all of our community members, Facebook fans, Twitter followers, blog readers and general company enthusiasts a very happy holiday season. Here’s a video from our leadership team to put a smile on your face. Click on image to play

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Sharing and Learning with PatientsLikeMe

3 Comments / ALS, Chronic Fatigue Syndrome, Epilepsy, Fibromyalgia, HIV/AIDS, Mental Health, Multiple Sclerosis, Organ Transplants, Parkinson's Disease, Patient Experiences, Rare Diseases / By patientslikeme

In December community newsletters (launched earlier this week), we asked some of our members to think about what they’ve shared and compared in 2010. Below are highlighted answers from each interviewee across all nine community newsletters. Thank you for your contributions. We also want to thank all of you who have contributed to the 90

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PatientsLikeMe at the American Epilepsy Society Meeting 2010

Epilepsy, Patient Experiences, Research / By patientslikeme

Earlier this month, PatientsLikeMe was fortunate enough to attend the 64th Annual Meeting of the American Epilepsy Society in San Antonio, Texas. We were there to spread the word about PatientsLikeMe to some 4,000 attendees including epileptologists (physicians specializing in the treatment of epilepsy), neurologists, nurses, and researchers. We had a great spot on the

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