“Patients are giving us their data, and we need to honor that by doing something that advances their disease, their cause, their power in the world.” – Jamie Heywood This week marks the fourth and final installment of our latest video series, which explores what the recent changes at PatientsLikeMe mean for you as well …
One for All: The Opportunity to Make Patients’ Lives Better Read More »
“I think what’s really exciting is the scale we’re operating under. My PhD was conducted with 80 patients. Last week, I got survey responses from 4,000 patients in a week. That is unparalleled power in the research world.” – Paul Wicks, PhD This week marks the third installment of our latest video series, which explores …
One for All: How Medical Research Is Changing Right Before Our Eyes Read More »
“You’re the patient who’s taking the medication. But industry can act almost like a friend who’s walking with you. And that relationship has never been the case in healthcare. Never.” – David S. Williams III Last week, we kicked off our latest video series with an interview with President and Co-Founder Ben Heywood about the …
One for All: Walking the Road Ahead with Both Patients and Industry Read More »
At the National Fibromyalgia & Chronic Pain Association, this year’s Fibromyalgia Awareness Day is themed CURE FM (Campaign for Understanding, Research & Education of Fibromyalgia), and many of our members are working to do just that. Beginning as early as January, our fibromyalgia members have worked together to order t-shirts, send letters to TV shows …
“I was diagnosed with lupus (SLE) at age 20 and had already lost about 60% of my kidney function. I had chemotherapy for nine months along with intense steroid therapy. I thankfully went into remission and have been since four months after my diagnosis. I still struggle with fatigue and kidney problems although I was …
Join the Band: Raising Our Voices for Lupus Awareness Read More »
“We’re just getting started on a long road to really impact your individual disease and your quality of life…” Each week this month, we’ll be posting a video interview with a member of the PatientsLikeMe executive team. You’ll hear from Ben Heywood, Jamie Heywood, David S. Williams and Paul Wicks, Ph.D. about what the recent …
One for All (Video): The Road Ahead at PatientsLikeMe Read More »
Congratulations to our R&D team here at PatientsLikeMe for its most recent paper published in Nature Biotechnology (“Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm”). The full paper has been made available by Nature so you can read the results and access all of the supplemental data and figures. Below are …
This Spring, as you’re out at disease-related fundraiser events, take note of the people in those bright blue t-shirts walking, running or biking by your side. Those are patients like you! Since its launch in 2009, more than 1,700 people (including patients, friends and family members) have taken part in the PatientsLikeMeInMotion™ program to raise …
One for All: The Road Ahead with PatientsLikeMeInMotion™ Read More »
When patients join our site, a common question we get is, “Now that I’ve signed up, what can I do here?” One answer is that you can chart the real-world course of your disease and compare it against other patients. But that sounds a little complex, doesn’t it? If we break it down into simpler …
One for All: Ways You Can Share, Find and Learn at PatientsLikeMe Read More »
As you know, we like to just check in with our members to see how you’re doing as a person, not just a patient. Today, we have a very special interview with one of our earliest members with ALS, SmoothS. We sat down with SmoothS to talk about his recent building of the first ever …
