“What are the things that affect a patient’s safety? It’s everything – it’s not just whether the drug is good or bad, it’s the whole process.” –Jamie Heywood Why does the healthcare industry need to shift from drug safety to patient safety? PatientsLikeMe Co-Founder and Chairman Jamie Heywood explains his view in this week’s edition of […]
PatientsLikeMeOnCall™: “A Look Ahead” at Patient Safety (Episode 3) Read More »
“Social media is the canvas on which patients can really paint the entire picture of the experience they’re having with their disease and how it impacts their lives.” – David Williams Why is it so important for patients and industry to work together? Chief Marketing Officer and Head of Business Development David Williams tells us
PatientsLikeMeOnCall™: “A Look Ahead” at Patient and Industry Interaction (Episode 2) Read More »
This Spring, as you’re out at disease-related fundraiser events, take note of the people in those bright blue t-shirts walking, running or biking by your side. Those are patients like you! Since its launch in 2009, more than 1,700 people (including patients, friends and family members) have taken part in the PatientsLikeMeInMotion™ program to raise
One for All: The Road Ahead with PatientsLikeMeInMotion™ Read More »
Since 2006, PatientsLikeMe has made great strides in medical research for patients. Of course, all of the research that we do is made possible because of you, our members, and your willingness to openly share your health information, including your treatments, symptoms and outcomes. PatientsLikeMe-led research has been published in at least six different scientific
PatientsLikeMeOnCall™: “A Look Ahead” at Research (Episode 1) Read More »
PatientsLikeMeOnCall™ is proud to present a new podcast series called “A Look Ahead.” Through these dynamic podcasts, we will be diving into the major shifts PatientsLikeMe sees ahead for patients, patient care and patient/industry collaboration. At the end of 2010, PatientsLikeMeOnCall released an episode called “The Patient Rules.” In this group podcast, we sat down with
Look Ahead with PatientsLikeMeOnCall™ Read More »
When patients join our site, a common question we get is, “Now that I’ve signed up, what can I do here?” One answer is that you can chart the real-world course of your disease and compare it against other patients. But that sounds a little complex, doesn’t it? If we break it down into simpler
One for All: Ways You Can Share, Find and Learn at PatientsLikeMe Read More »
How are you feeling today – honestly? In December, PatientsLikeMe launched a new feature called InstantMe. It’s designed to allow you to chart how you are feeling day in and day out. Is today a bad day? Record it on InstantMe (found on your profile), and if you’d like, add a note explaining what’s going
Share and Compare: What Have You Learned with InstantMe? Read More »
For patients with prevalent diseases, it may be easy to find others with your condition. You meet them at clinics; you run into them when seeing your specialist; or you participate in one of the support groups in your area. For those with rare diseases, the simple act of finding another patient like you isn’t
Rare Disease Day 2011: “Rare, But Equal” Read More »
At PatientsLikeMe, we have a Privacy Policy that explains what we do with the health data that patients like you share. But as many of you know, we also have an Openness Philosophy, which outlines what we believe are the substantial benefits of being open versus private about your condition. Here’s an excerpt: “Currently, most
Patient Choices: How Open Are You Now? Read More »
In these days of Facebook and Twitter, the media is abuzz with news of “over sharing” of sensitive, personal or trivial information – everything from your current location to what you were up to over the weekend. Members on our site may choose to share some of this, but what about some of the less
Patient Choices: The Shape of Sharing Read More »
