PatientsLikeMe Refutes Published Clinical Trial

screen-shot-2011-04-25-at-41612-pmCongratulations to our R&D team here at PatientsLikeMe for its most recent paper published in Nature Biotechnology (“Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm”).  The full paper has been made available by Nature so you can read the results and access all of the supplemental data and figures.

Below are links to some of the media coverage about the paper, as well as a link to our own news release announcing the study results.

A special thank you to all of the ALS patients on our site for sharing the data that helped create this new insight and accelerate discovery like its never been done before.  Now that we’re open to all patients with any condition, we know your sharing will inspire the masses to share and learn together.


Marketwire (our news release)
PatientsLikeMe Social Network Refutes Published Clinical Trial

The Wall Street Journal
ALS Study Shows Social Media’s Value as Research Tool
The Future of Social Network-Based Trials

Boston Business Journal
PatientsLikeMe hits ALS study

FierceBiotech IT
PatientsLikeMe study challenges prior ALS claims

PatientsLikeMe member bheywood

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3 thoughts on “PatientsLikeMe Refutes Published Clinical Trial”

  1. Thank you for this article. It was interesting to read the part about self-reported data. I can image that it would be harder to deal with clinical trials that involve large financial interests. In any case, sharing stories with patients like me is priceless. Thank you for all the great job you do to enable that.

  2. Pingback: The Value of Openness: The PatientsLikeMe Blog » Raise Your Awareness of ALS (Lou Gehrig’s Disease)

  3. Pingback: » = National Type 1 Diabetes Registry + Social Media “Wow Factor” - DiabetesMine: the all things diabetes blog

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