PatientsLikeMe Refutes Published Clinical Trial

Posted April 25th, 2011 by

screen-shot-2011-04-25-at-41612-pmCongratulations to our R&D team here at PatientsLikeMe for its most recent paper published in Nature Biotechnology (“Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm”).  The full paper has been made available by Nature so you can read the results and access all of the supplemental data and figures.

Below are links to some of the media coverage about the paper, as well as a link to our own news release announcing the study results.

A special thank you to all of the ALS patients on our site for sharing the data that helped create this new insight and accelerate discovery like its never been done before.  Now that we’re open to all patients with any condition, we know your sharing will inspire the masses to share and learn together.


Marketwire (our news release)
PatientsLikeMe Social Network Refutes Published Clinical Trial

The Wall Street Journal
ALS Study Shows Social Media’s Value as Research Tool
The Future of Social Network-Based Trials

Boston Business Journal
PatientsLikeMe hits ALS study

FierceBiotech IT
PatientsLikeMe study challenges prior ALS claims

PatientsLikeMe member bheywood


  1. Thank you for this article. It was interesting to read the part about self-reported data. I can image that it would be harder to deal with clinical trials that involve large financial interests. In any case, sharing stories with patients like me is priceless. Thank you for all the great job you do to enable that.

  2. […] that was published in the scientific journal Nature Biotechnology last month. The findings, which refuted a previous clinical trial, garnered a good deal of media coverage for not only showing the real-world effects of the drug (no […]

  3. […] Patients on the Glu site will soon be able to not only search for clinical trials, but also add more self-reported data to be used in research projects, akin to what Patients Like Me has done. […]

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