More than 1,600 members of the PTSD community on have reported experiencing severe nightmares, and there are dozens of forum threads tagged with topic. So, we took a deeper dive into PTSD nightmares and some of the research-backed approaches you can try to help manage them. How common are nightmares after trauma? The quick answer: Very common. According […]
PTSD Nightmares: Why they’re happening and what you can do Read More »
Member Gloria (sunshine221) has been here almost since the start. The Parkinson’s Disease (PD) community on PatientsLikeMe launched in 2007, and Gloria joined in 2008. We recently caught up with her about her early days with PD, how she has used PatientsLikeMe through the years and what she’s up to now. Early days with PD
Did you know this week is National Sleep Awareness Week? Sleep disorders affect around 50-70 million US adults, and troubled sleep is common within the patient community – just take a look at the results from a patient poll we did with you in 2015. There are many reasons someone might be struggling with a
Talking medication and sleep for National Sleep Awareness Week Read More »
Every minute of every day, people are sharing their health data on PatientsLikeMe. Some of you are focused on tracking how you’re doing over time. Many want to make sure the next person diagnosed can learn from your experience. All are contributing to the greater good, because what you share helps researchers see what patients
Your data doing good: IPF treatment experiences Read More »
Yesterday, our interview with bipolar blogger Andrea gave you a glimpse into what it’s like to live with bipolar I disorder. Today we take a deeper look into this mental health condition using the data and experiences shared by our 1,237 bipolar I members. First off, however, you may have heard of something called bipolar
Life with Bipolar I Disorder: What We’ve Learned Read More »
As we mentioned in our blog about the “Calling All Types” campaign last week, November is American Diabetes Month. Today, November 1st, is also “T1 Day,” a new event sponsored by the Juvenile Diabetes Research Foundation (JDRF) to raise awareness about type 1 diabetes (previously known as juvenile diabetes), which is often diagnosed in children,
American Diabetes Month Kicks Off with “T1 Day” Read More »
Do you suffer from nerve sensitivity – or a feeling akin to pins and needles? Known clinically as paresthesia, this uncomfortable sensation if often described as a tingling, pricking and/or creeping feeling. For some people with nerve sensitivity, it can be painful for clothing to touch your skin. Although there is no objective causes, nerve
Coping with Nerve Sensitivity Read More »
“When you have a child with special needs, you really start to feel like you’re constantly the squeaky wheel as you advocate for your child. After a while, you start to wonder…’is it me?’ But I’ve already found several other parent advocates who are going through the same thing.” – Autism Caregiver It’s Autism Awareness
How Much Do You Know About Autism and IBS? Read More »
BVVP (more commonly abbreviated as BPPV) stands for benign paroxysmal positional vertigo. A disorder caused by inner ear problems, it is characterized by repeated episodes of positional vertigo that are triggered by repositioning or moving the head. This produces a spinning sensation that disorients the BVVP/BPPV patient. At PatientsLikeMe, where more than 120,000 patients are
Learn from Others with BVVP (Positional Vertigo) Read More »
Patients like you with life-changing conditions have to make choices every day, just like anyone else. These choices, however, typically have more at stake than how to RSVP to a party or even whether to walk away from an “underwater” home. For patients like you, your lives may be at stake. I have watched my
The Choices Patients Like You – and Like My Mother – Face Read More »
