jamie heywood

The Patient Rules. A Discussion with the PatientsLikeMe Executives

1 Comment / ALS, Chronic Fatigue Syndrome, Epilepsy, Fibromyalgia, HIV/AIDS, Mental Health, Multiple Sclerosis, One for All, Organ Transplants, Parkinson's Disease, Patient Experiences, Rare Diseases, Research / By

We recently sat down with our executive team here at PatientsLikeMe in our first-ever roundtable-format podcast.  In this PatientsLikeMeOnCallTM interview, we ask Co-founders Ben and Jamie Heywood, Chief Marketing Officer David S. Williams III, and R&D Director Paul Wicks PhD to discuss why our recent series themes are so important to the history and future […]

The Patient Rules. A Discussion with the PatientsLikeMe Executives Read More »

What Data Do We Sell? A Continued Discussion about “Data Scraping”

9 Comments / ALS, Chronic Fatigue Syndrome, Epilepsy, Fibromyalgia, HIV/AIDS, Mental Health, Multiple Sclerosis, Organ Transplants, Parkinson's Disease, Patient Experiences, Rare Diseases / By

In response to the Wall Street Journal article published last week, we’ve had a lot of great discussions about the role of honesty and transparency. Transparency is about you – members of the PatientsLikeMe community – knowing how we make money and what we do with the data you’ve entrusted to each other and PatientsLikeMe.

What Data Do We Sell? A Continued Discussion about “Data Scraping” Read More »

Drug Safety: It’s About More Than Just Compliance

2 Comments / Epilepsy, Multiple Sclerosis, Organ Transplants / By

Engaging in social media presents a number of uncertainties to pharmaceutical companies. In a world where much of the medical dialog has moved online, these uncertainties have emerged due to absent or unclear guidelines from the Federal Drug Administration (FDA), privacy and regulatory concerns about engaging directly with patients, and the potential for significant consequences.

Drug Safety: It’s About More Than Just Compliance Read More »

PatientsLikeMe – Out & About and OnCall

1 Comment / ALS, Chronic Fatigue Syndrome, Epilepsy, Fibromyalgia, HIV/AIDS, Mental Health, Multiple Sclerosis, Organ Transplants, Parkinson's Disease, Patient Experiences, Rare Diseases, Research / By

The PatientsLikeMe team has been traveling around the globe recently talking about the power of real-world patient data in changing healthcare.  You may have heard about our executives at industry conferences, government hearings, or even on TV.  Highlights below. Last month, PatientsLikeMe Co-founder and President Ben Heywood was on Fox Business News talking about how

PatientsLikeMe – Out & About and OnCall Read More »

Where are the Cures?
An interview with Myelin Repair Foundation

5 Comments / ALS, Chronic Fatigue Syndrome, Epilepsy, Fibromyalgia, HIV/AIDS, Mental Health, Multiple Sclerosis, Parkinson's Disease, Patient Experiences, Rare Diseases, Research / By

PatientsLikeMe partner, Myelin Repair Foundation (MRF), is a nonprofit organization devoted to reducing the time it takes to discover and develop treatments for multiple sclerosis (MS) patients.  Recently, the MRF launched a campaign called “Where are the Cures?” – a site dedicated to a greater understanding of the barriers slowing the discovery and development of

Where are the Cures?
An interview with Myelin Repair Foundation Read More »

Who’s #2 in Healthcare Innovation?
You guessed it – PatientsLikeMe

1 Comment / Patient Experiences / By

It’s been an exciting few months for PatientsLikeMe.  Here’s a quick recap… Today, Fast Company released its annual  ranking of the 50 Most Innovative Companies in the World.  PatientsLikeMe made #23 on the list alongside big league companies like Facebook, Disney, Novartis and Amazon.  PatientsLikeMe was also named the second most innovative company in healthcare,

Who’s #2 in Healthcare Innovation?
You guessed it – PatientsLikeMe Read More »

A Year in Review: PatientsLikeMe in 2009

4 Comments / ALS, Chronic Fatigue Syndrome, Epilepsy, Fibromyalgia, HIV/AIDS, Mental Health, Multiple Sclerosis, Parkinson's Disease, Patient Experiences, Rare Diseases, Research / By

As 2009 comes to an end, we want to take this opportunity to thank all of our members, partners and general fans for another great year.   Here’s a recap of some of the exciting happenings at PatientsLikeMe these past 12 months.  Wishing you all a Happy New Year! Community Milestones This year, the 15+ disease

A Year in Review: PatientsLikeMe in 2009 Read More »

PatientsLikeMe @ The 20th International ALS/MND Symposium in Berlin

ALS, Patient Experiences, Research / By

The 20th International Symposium on ALS/MND took place (December 8th-10th) in Berlin, Germany. This is the 4th ALS Symposium attended by PatientsLikeMe, and certainly the most exciting in terms of new findings. The annual symposium is a tremendous opportunity for researchers from around the world to meet and share new developments – it’s the big

PatientsLikeMe @ The 20th International ALS/MND Symposium in Berlin Read More »

Scroll to Top