ALS

microphone button computer keyboard

Communicating with ALS: From devices to voice banking

Difficulty with speech and communication is a frustrating reality for many living with ALS. From apps to devices and voice banking, communication is a popular topic (as in over 35k conversations) on PatientsLikeMe, so we took a closer look into some of the options out there for pALS. Tablets: Windows vs. iPad vs. Android Trouble with typing

Communicating with ALS: From devices to voice banking Read More »

Shout out to The Golden Girls: Shows and movies that “get” chronic illness

‘Tis the season for binge-watching — but the media often flops in its portrayal of people with health conditions. So we’ve gathered patient perspectives on Hollywood depictions of illness and who’s gotten it right (thanks, Bea Arthur). When doctors doubted Dorothy A writer for The Mighty who has multiple health condition recently praised The Golden Girls for it’s portrayal

Shout out to The Golden Girls: Shows and movies that “get” chronic illness Read More »

Illustrating member perspectives on life with chronic illness

In medical terms, most health conditions have clear definitions. But only people living with chronic illness know what it really feels like to live with it — and making others understand can be a challenge. When we asked some PatientsLikeMe members to explain what life was like with their condition, their responses painted vivid pictures of what

Illustrating member perspectives on life with chronic illness Read More »

From tomatoes to turmeric: Can foods fight inflammation?

Inflammation is a hot topic. What’s it all about? And what’s the scoop on certain diets, foods and supplements, such as turmeric, when it comes to fighting inflammation? What is inflammation? Not all inflammation is “bad.” Acute inflammation is part of the body’s natural way of defending itself from foreign substances like viruses, bacteria, cuts and splinters.

From tomatoes to turmeric: Can foods fight inflammation? Read More »

The ALS battle forces changes: A guest blog by member Jim Burton, the ALS Warrior

A harsh reality of progressive diseases like ALS is that your body is constantly changing. After my ALS diagnosis in January 2013, I noticed that the progression seemed to happen in stages. After losing some degree of capacity, I’d settle on a new plateau, which became my norm for a while. The plateaus have become

The ALS battle forces changes: A guest blog by member Jim Burton, the ALS Warrior Read More »

Want to know more about Radicava (edaravone)? Here’s a snapshot:

With the recent FDA approval of Radicava (edaravone), we wanted to know more about how it works and what it means for patients living with ALS. We asked Maria Lowe, Pharm.D., BCPS, and our Health Data Integrity team, to give us a snapshot of the drug, how it’s used and what you should know. Maria’s rundown

Want to know more about Radicava (edaravone)? Here’s a snapshot: Read More »

Scroll to Top