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5 Causes of Rheumatoid Arthritis

Patient Experiences, Rheumatoid Arthritis / By

Rheumatoid arthritis is one of the most common forms of arthritis, affecting 1.3 million adults in the United States. It’s an autoimmune disease, meaning the immune system mistakenly attacks healthy cells in the body instead of protecting them. A healthy immune system protects against germs and sends fighter cells to attack them. But with autoimmune diseases, the immune system treats normal cells like foreign cells and releases autoantibodies that attack healthy cells. Autoantibodies are […]

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Job Hunting While Living with a Disability or Chronic Illness

Patient Experiences / By

According to the CDC, 61 million adults (or 1 in 4 adults) in the United States live with a disability. In addition, chronic diseases affect approximately 133 million Americans, representing more than 40% of the total population of the United States. In fact, the National Health Council states “more and more people are living with not

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Lupus Weight Gain: Q&A with the founder of Making Lupus Look Good

Conditions, Lupus / By

Alyshia Merchant knows first-hand how lupus can affect you inside and out. After her diagnosis in 2012 and struggles with visible symptoms and self-esteem, she launched an organization called Making Lupus Look Good, which provides wigs and “glam sessions” to people with lupus-related hair loss and other symptoms. The organization currently serves people in Alyshia’s home

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Epidiolex: First FDA-approved drug made from cannabis component (CBD)

Epidiolex: First FDA-approved drug made from cannabis component (CBD)

1 Comment / Conditions, Epilepsy / By

In a historic move, the U.S. Food and Drug Administration (FDA) recently approved Epidiolex — an epilepsy medication made from purified cannabidiol (CBD), found in cannabis. Read all about it and what it could mean for the future of cannabis-based treatments. As background, see these other recent write-ups we’ve done on medical cannabis/marijuana and CBD. What is Epidiolex?

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antidepressants

Key takeaways from a recent study on antidepressants

1 Comment / Conditions, Depression / By

The World Health Organization reports 300 million people live with depression, but less than half receive effective treatment. A recent study in the journal The Lancet has been making headlines for comparing the effectiveness of antidepressant medications — information that is often lacking for patients trying to make informed choices about their treatments. They found that all of the

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Defining “good” health care: 2 new studies reveal patient perspectives

2 Comments / Conditions, Depression, Fibromyalgia, Patient Experiences, PTSD, Research / By

Do you feel you’re getting the best possible care from your doctor? In two recent studies, PatientsLikeMe members answered this question and shared their perspectives on the health care they’re receiving. The results show that while patient opinions about care and provider performance vary according to condition, diverse patient groups agree on the top factors that define

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Courtship with a chronic condition: How “20 Questions” led to a 20+ year relationship

3 Comments / Conditions, Parkinson's Disease, Patient Experiences / By

What’s it like dating and starting a relationship when one of you has a chronic condition? Just ask our blog partners Karl and Angela Robb, who’ve been together for 22 years and married for 21 years. Karl has been living with young-onset Parkinson’s disease (PD) for more than 30 years. He and Angela are the couple behind

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