ALS and Athleticism: What Have We Learned?

Posted August 18th, 2011 by

“Clinicians are used to seeing ALS patients who are or have been athletic. So is there a link, and if so, could exercise have a direct effect on the condition?”BMJ Group Podcasts

In 2010, PatientsLikeMe researchers collaborated with the University of Oxford Motor Neuron Disease (MND) Centre in the UK on a study about ALS handedness. What they discovered is that when ALS patients get symptoms in their arms first, they’re more likely to get them in their dominant arm. However, there was no correlation between lower limb onset and the dominant leg. This noteworthy research was presented at the ALS MND Symposium the same year.

BMJ Group Podcasts, Featuring Dr. Martin Turner

Recently, this paper was selected by the medical journal that published it as the “Patient’s Choice” article, meaning that it will be open access for all patients to read as well as the subject of a podcast. Tune in below to hear the podcast interview with the lead study author, Dr. Martin Turner, about what this research means and how it ties into his ongoing investigation of a possible connection between athleticism and ALS. (Jump to the 8:30 mark for his interview.)

Listen to the podcast interview with Dr. Martin Turner here.


3 Comments

  1. [...] We collect de-identified patient data and work with non-profits, academic researchers and pharmaceutical companies to better understand what’s working for patients, and what they need. We’re also a real-time research platform that’s proven you can do science on the internet. Today we’re the most highly cited patient research platform anywhere on the web. There’s about 1,800 citations to us on Google Scholar in addition to the papers that we’ve written. We’ve published over 35 peer reviewed papers in the last five years, based on data gathered from PatientsLikeMe. We did a clinical trial over the internet. We’ve developed new outcome measures for MS and ALS and Parkinson’s. We do predictive modeling. We’ve built a tool that can match patients to clinical trials anywhere in the world, for which they might be eligible. We’ve discovered some important things about diseases. For example, we’ve found that if you’re going to get ALS in your arms, you’re more likely to get it the same side as your dominant hand. [...]

  2. [...] We collect de-identified patient data and work with non-profits, academic researchers and pharmaceutical companies to better understand what’s working for patients, and what they need. We’re also a real-time research platform that’s proven you can do science on the internet. Today we’re the most highly cited patient research platform anywhere on the web. There’s about 1,800 citations to us on Google Scholar in addition to the papers that we’ve written. We’ve published over 35 peer reviewed papers in the last five years, based on data gathered from PatientsLikeMe. We did a clinical trial over the internet. We’ve developed new outcome measures for MS and ALS and Parkinson’s. We do predictive modeling. We’ve built a tool that can match patients to clinical trials anywhere in the world, for which they might be eligible. We’ve discovered some important things about diseases. For example, we’ve found that if you’re going to get ALS in your arms, you’re more likely to get it the same side as your dominant hand. [...]

  3. [...] We collect de-identified patient data and work with non-profits, academic researchers and pharmaceutical companies to better understand what’s working for patients, and what they need. We’re also a real-time research platform that’s proven you can do science on the internet. Today we’re the most highly cited patient research platform anywhere on the web. There’s about 1,800 citations to us on Google Scholar in addition to the papers that we’ve written. We’ve published over 35 peer reviewed papers in the last five years, based on data gathered from PatientsLikeMe. We did a clinical trial over the internet. We’ve developed new outcome measures for MS and ALS and Parkinson’s. We do predictive modeling. We’ve built a tool that can match patients to clinical trials anywhere in the world, for which they might be eligible. We’ve discovered some important things about diseases. For example, we’ve found that if you’re going to get ALS in your arms, you’re more likely to get it the same side as your dominant hand. [...]

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