2 posts tagged “psoriasis survey”

Raising awareness for psoriasis, all year long.

Posted August 9th, 2013 by

As many of you out there know, August is National Psoriasis Awareness Month, but it’s not the only time of year that you’re helping shine a spotlight on this chronic, autoimmune disease. This year, we wanted to take a look back at all the ways your community, both inside and out of PatientsLikeMe, has helped raise awareness for psoriasis.

The patient perspective
Eight different patients have shared their experiences with psoriasis on our blog. They’ve opened up about bullying in school, treatments that work for them and how connecting with others who understand what they’re going through impacts their life. Here are three of the most recent psoriasis patient interviews you can check out on our blog.

Maria– The real me
David– I still haven’t given up hope
Erica– Finding peace and confidence

 

What the docs have to say
We’ve also been interviewing dermatologists to get their perspective on psoriasis. They’ve spoken with us about everything from what they wished more psoriasis patients knew to how data sharing can change healthcare for good. Here are a couple interviews in case you missed them.

Dr. Jerry Bagel– Taking psoriasis treatment to the next level
Dr. Steve Feldman– Psoriasis, adherence and more

 

Contributing to research to advance healthcare
The PatientsLikeMe psoriasis community has also been raising awareness while actively adding their voices to real-time research. We just posted what we discovered in our fourth Uncovering Psoriasis seasonal survey. You can check out all the results from this and previous surveys too.

Spring 2013 survey results
Winter 2012 survey results
Fall 2012 survey results
Summer 2012 survey results

 

If you’re living with psoriasis, find others just like you in our growing community of more than 4,000 psoriasis patients on PatientsLikeMe. Learn what they’re doing to manage their condition with symptom and treatment reports, and share your own experience with a personal health profile or in the community forum.

 


PatientsLikeMe Exhibits at the American Academy of Dermatology Summer Meeting

Posted August 24th, 2012 by

The American Academy of Dermatology Summer Academy Meeting Took Place Last Week in Boston - and PatientsLikeMe Was There!

As you know from our recent blog post, August is Psoriasis Awareness Month, and the psoriasis community at PatientsLikeMe has nearly 2,000 members. It’s only fitting that PatientsLikeMe spent last week connecting with others focused on skin health at the American Academy of Dermatology (AAD) Summer Academy Meeting, an annual educational event for dermatology-focused medical professionals. Held at the Hynes Convention Center here in Boston from August 15-19th, the conference hosted over 1,350 healthcare providers and featured more than 140 exhibitors, including PatientsLikeMe.

If you happened to be at the event and ventured by our booth, you would have seen the friendly faces of PatientsLikeMe employees Sally Okun, Lori Scanlon, Chris Fidyk, Marcy Fitz-Randolph and Sebastiaan Foppema, who spent time chatting with dermatologists and giving them information about the 5,000+ patients with a range of skin conditions at PatientsLikeMe. The team received a lot of positive feedback from providers about the site, as well as specific features such as our Doctor Visit Sheet. Sally, who oversees heath data integrity at PatientsLikeMe, even added a new condition, confluent and reticulated papillomatosis (CARP), to the PatientsLikeMe system in real time after speaking with a provider who specializes in that condition..

A Glimpse of the PatientsLikeMe Booth Before the Attendees Arrived

In the near future, we’ll be revealing results from a new patient survey aimed at uncovering the emotional and physical effects of psoriasis, a chronic autoimmune condition. Keep your eyes out for an in-depth post with those results!

PatientsLikeMe member ccydylo