The medical term for a heightened or increased sense of smell is hyperosmia. Also known as olfactory hyperesthesia and hyperesthesia olfactoria, the word “hyperosmia” is a combination of the Greek work “hyper,” meaning “above,” and the Greek word “osme,” meaning “sense of smell.” Put together, hyperosmia is an abnormally increased sensitivity to smells and odors. […]
Learn More About Your Heightened Sense of Smell Read More »
The research team is very proud of how our team has grown in 2010 and the impact we’ve made in the academic community. In 2010 alone, PatientsLikeMe and our work were mentioned in scientific literature more than 133 times. All of this is because of what you share with us. Yesterday, we highlighted some of
Share and Compare: A PatientsLikeMe Year in Review (Part III – more R&D) Read More »
Last week, we posted highlights from our December community newsletter interviews. As we close out 2010, we want to spotlight another question asked this month – one that is relative to all members, all patients (no matter the condition). What obstacles have you faced and overcome this year? To review all of our newsletters, you
Overcoming Obstacles – Newsletter Highlight 2010 Read More »
In December community newsletters (launched earlier this week), we asked some of our members to think about what they’ve shared and compared in 2010. Below are highlighted answers from each interviewee across all nine community newsletters. Thank you for your contributions. We also want to thank all of you who have contributed to the 90
Sharing and Learning with PatientsLikeMe Read More »
One of the ways we can better understand whether you, as patients, are having a positive or negative treatment experience is to “listen” to the conversation you’re having in our forum. By understanding whether you are having a positive, negative, or neutral experience with a particular treatment you are taking or are considering taking, we
Treat Us Right: Mapping What Patients Think About Medications Read More »
We’ve been learning about how connected our patients are this week in our blog series called “One for All.” In the first two blogs by Jeff Cole, we read (and saw through cool graphics) how some of our members are initiating an unparalleled universe of dialogue. Today, we sit down with one of those members,
One for All: Interview with Diamondlil58 (Welcomer of 15k Patients) Read More »
Our research team here at PatientsLikeMe carries out world-class research in collaboration with academic centers, commercial partners (see “how we make money“), and to help answer questions from our patients. We share our findings with the world through this blog, peer-reviewed publications, and by attending academic conferences like the Consortium of Multiple Sclerosis Centers (CMSC)
Multiple Sclerosis: Sustaining Care, Seeking a Cure Read More »
It’s MS Awareness Month and we’re excited to bring you information from our nonprofit partner, Accelerated Cure Project for MS. We briefly mentioned the Accelerated Cure Repository in our blog interview with Devic’s patient, Gracie. We thought we’d take the opportunity to ask The Accelerated Cure Project for MS a bit more about the repository
Celebrating MS Awareness Month:
Interview with Accelerated Cure’s Sara Loud Read More »
At PatientsLikeMe, we believe in getting to know the person, not just the “patient.” That’s why we interview members each month in our newsletter to find out more about how they approach life. In honor of MS Awareness Month, we are pleased to share with you our recent interview with Ramilla, a three-star member of
Raising MS Awareness: Meet Ramilla… Read More »
Today, we’re joining the National Organization for Rare Disorders (NORD) to help raise awareness for Rare Disease Day. In recognition of the day, we recently interviewed Gracie, a valued member of our Devic’s Neuromyelitis Optica (NMO) community. Devic’s NMO is a rare autoimmune inflammatory disorder which affects the optic nerve and spinal cord and is
It’s Rare Disease Day!
Interview with Gracie (Devic’s NMO Patient) Read More »
