We first introduced you to E-Patient Dave – a well-known blogger, author and keynote speaker in the healthcare space – last summer. Given our similar views on many health matters, we see a lot of E-Patient Dave at the conferences and events we attend. Case in point, our President and Co-Founder Ben Heywood was on a panel with him at the Military Health System Conference just a few weeks ago.
For this particular “high-speed” panel, each speaker was given just 12 minutes to share their story. So what did E-Patient Dave do? Exactly what any good digital age citizen would: he covered the important things and then directed people to his website to find all the related websites and resources. Given that he’s a cancer survivor and e-patient advocate who believes in “letting patients help,” we were curious what links E-Patient Dave recommends for others who are seeking to take control of their health and join the e-patient movement.
Here’s a sampling of Dave’s top resources along with a brief description:
All About the E-Patient Movement, and Its Founder, Dr. Tom Ferguson (“Doctom”)
- Society for Participatory Medicine, its journal and its blog e-patients.net (the hub)
- Medical Self-Care (pioneering 1985 article by Dr. Tom Ferguson)
- e-Patients as Medical Researchers (key 2002 article by Dr. Tom Ferguson)
- e-Patients White Paper (see Ferguson’s Seven Preliminary Conclusions, Chapter 2)
- Patient Activation Measure (Dave’s article about developing patient engagement)
Other Resources for the Budding E-Patient
- Visible Body (a good start to understanding anatomy)
- Open Notes (a doctor-patient project funded by the Robert Wood Johnson Foundation)
- Peer-to-Peer Healthcare (insightful 2011 Pew Internet independent research report)
- CaringBridge (patient blogs to ease the communication burden during a health crisis)
- GlowCaps (prescription bottle caps that use light/sound to help remind you)
(See Dave’s full list of resources here.)
What about all of you e-patients out there? Do you have any Internet resources that other patients should know about? Share your own recommendations in the comments section.
p.s. In December, E-Patient Dave stopped by our office to talk to the team during our weekly Journal Club luncheon. Stay tuned for a podcast of what he shared with us.