Awareness Archives

Spotlighted Blogger: Parkinson’s Patient Steve Ploussard of “Attitude & Fitness Wins”

2 Comments / Parkinson's Disease, Patient Experiences / By patientslikeme

Last week we kicked off a new blog series featuring patient bloggers, and today, we’re pleased to present our second installment. Please meet Steve Ploussard, a longtime PatientsLikeMe member who writes a blog about living with Parkinson’s disease (PD) called “Attitude & Fitness Wins.” Steve decided that blogging was the perfect way to “come out” […]

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Today’s Photo: Mama in Motion

Multiple Sclerosis / By patientslikeme

Please meet multiple sclerosis (MS) patient hotmama08, who led a PatientsLikeMeInMotion-sponsored team that included two four-legged advocates at Walk MS in Columbia, SC, on May 14, 2011. We especially love how the team member to the right wore bright blue shoes to match her PatientsLikeMeInMotion t-shirt! Congrats to hotmama08 and all of our PatientsLikeMeInMotion-sponsored teams

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Today’s Photo: Uniting for Parkinson’s

Parkinson's Disease / By patientslikeme

Please meet Parkinson’s disease (PD) patient Judith, who led a PatientsLikeMeInMotion-sponsored team at the Parkinson’s Unity Walk in New York City last April. Held annually in Central Park, this massive grassroots event donates 100% of funds raised to PD research. Congrats to Judith and all of our PatientsLikeMeInMotion-sponsored teams for your efforts to raise funds

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PATIENTSLIKEME AND R.A.R.E PROJECT UNITE TO FIND AND CONNECT ONE MILLION RARE DISEASE PATIENTS

3 Comments / Patient Experiences, Rare Diseases, Research / By patientslikeme

FOR IMMEDIATE RELEASE Nonprofit and “Not Just for Profit” Announce Collaboration at PartneringForCures Event NEW YORK, NY – November 7, 2011 – Today, PatientsLikeMe and R.A.R.E Project, a nonprofit advocacy and support group for patients with all rare diseases, announce a new partnership to find and connect 1 million rare disease patients to share and

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Creating Wheelchair Awareness Through Photos

6 Comments / ALS, Multiple Sclerosis / By patientslikeme

For someone who uses a wheelchair, there are barriers and hazards everywhere – things that others may not see. But how do you raise visibility of the issue? One of our longtime MS members, gamma, decided that a photo essay of the obstacles that exist in her neighborhood (considered a wheelchair-friendly community) and others would

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Photo of the Week: Little People in Motion

Multiple Sclerosis / By patientslikeme

Please meet the youngest supporters of MS member Not Awake, who led a PatientsLikeMeInMotion-sponsored team at a Walk MS event in Springfield, Missouri, this spring. Although our bright blue t-shirts are offered in adult sizes only, you’ll see that this young fellow was able to wear a creatively adapted version nonetheless. Congrats to Not Awake

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See the PatientsLikeMeInMotion Program in Action

1 Comment / ALS, Chronic Fatigue Syndrome, Conditions, Epilepsy, Fibromyalgia, HIV/AIDS, Mental Health, Multiple Sclerosis, Organ Transplants, Parkinson's Disease, Rare Diseases / By patientslikeme

We’ve shared a lot of great photos on the blog lately of run/walk teams sponsored by PatientsLikeMeInMotion this year. Now you can learn more about this dynamic program in a more dynamic format with our new PatientsLikeInMotion video. Find out how to get involved, what sponsorship entails and how much PatientsLikeMe has donated towards our sponsored

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Photo of the Week: Three Generations in Motion

Multiple Sclerosis / By patientslikeme

A multiple sclerosis (MS) diagnosis affects the whole family, which is why it can be great to get the whole family involved in awareness activities. Please meet PatientsLikeMeInMotion team leader PepsiGirl, who was supported by several family members at a 2011 Walk MS event in her home state of New York. Congrats to PepsiGirl and

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Photo of the Week: Newly Diagnosed Patients in Motion

Epilepsy / By patientslikeme

For a newly diagnosed patient, organizing a run/walk/bike team sponsored by PatientsLikeMeInMotion can be a way to take action, “go public” and make new connections. Please meet Monkey Mamma, who was diagnosed with epilepsy last year, at the Epilepsy Foundation‘s Stroll for Epilepsy on April 9, 2011, in Dallas, Texas. Congrats to Monkey Mamma and all

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Photo of the Week: Wheels in Motion

ALS / By patientslikeme

A number of our ALS and PLS members use wheelchairs, but that doesn’t keep them from participating in awareness walks sponsored by PatientsLikeMeInMotion. Please meet Power Mom, a grandmother of six who led a team at the Walk to Defeat ALS in Long Island, New York. Congrats to Power Mom and all of our sponsored teams

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