Awareness

March is Brain Injury Awareness Month. Let’s learn more, together.

Brain injuries can happen to anyone, anywhere at any time. The important thing to know is that you’re not alone, which is the primary theme of Brain Injury Awareness Month organized by the Brain Injury Association of America (BIAA). At least 2.5 million children and adults sustain traumatic brain injuries (TBI) in the U.S. each …

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Cancer Awareness in September: prostate, thyroid and ovarian

September is all about education — and not just because it’s back to school month. It’s also the official awareness month for three different types of cancer: prostate, thyroid and ovarian. Here’s a snapshot of what national organizations have done to spread more understanding…   Prostate cancer: #StepUp, get checked The Prostate Cancer Foundation (PCF) has …

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The community speaks out for Pulmonary Fibrosis Awareness Month

How much do you know about pulmonary fibrosis? Today kicks off Global PF Awareness Month, and to spread more understanding for this condition which affects over 6,600 PatientsLikeMe members, we asked the community to speak up. In a recent forum thread, members chimed in with the one thing they think people should know about what it’s …

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“Adapt, improvise and overcome.” — PatientsLikeMe member Dana shares her experience for Sjögren’s Awareness Month

In honor of Sjögren’s Awareness Month, we connected with PatientsLikeMe member Dana, a New Jersey-based poet and screenplay writer who was recently diagnosed. This isn’t the first time we’ve interviewed Dana — she was a member of our 2014 Team of Advisors! Here, Dana talks about the daily challenges of living with Sjögren’s, an autoimmune …

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“We are the ones that know what is required to give us the care we deserve” — Member Ann shares her story for Rare Disease Day

 February 29 only comes around every four years – and this year, it’s extra special: Today marks the 9th annual Rare Disease Day. In the United States, a disease is considered rare if it affects less than 200,000 people at any given time.1  This year’s theme is all about elevating the patient voice, so we caught up with …

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