You raised your voice, we listened. Today we launch our newest community: Fibromyalgia. This is the first in our special blog series, Voices of Fibromyalgia.
The impact of the disease on people’s lives can be enormous. People often have difficulty completing even the easiest of tasks during the painful episodes, while the fatigue can also be debilitating. Many patients with fibromyalgia struggle with presenteeism at work which can lead to disciplinary action or worse.
It’s time to take a stand. We have decided to build this fibromyalgia community because we want to capture the realities of this disease and give patients a voice. We want to research it and understand how it affects people’s lives. We want to use this data and the community to create awareness about the disease and settle the “debate” about the validity of the condition.