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Defining “good” health care: 2 new studies reveal patient perspectives

2 Comments / Conditions, Depression, Fibromyalgia, Patient Experiences, PTSD, Research / By

Do you feel you’re getting the best possible care from your doctor? In two recent studies, PatientsLikeMe members answered this question and shared their perspectives on the health care they’re receiving. The results show that while patient opinions about care and provider performance vary according to condition, diverse patient groups agree on the top factors that define […]

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“We are all connected”: Check out this new video starring the 2018 Team of Advisors

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Have you had a chance to meet the 13 members selected to join the 2018 Team of Advisors? Get a glimpse of the dynamic group in this new 2-minute video, and keep an eye on the PatientsLikeMe newsfeed and Facebook page for their individual videos and stories. This group will be collaborating with us in the next year to offer

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Life-changing second opinion stories: “I decided to get a second and third opinion…”

3 Comments / ALS, Bipolar disorder, Conditions, Idiopathic Pulmonary Fibrosis, Multiple Sclerosis, Parkinson's Disease, Patient Experiences, PTSD / By

Stories showing the importance of second opinions have been popping up in the media and on PatientsLikeMe. Check out the recent news headlines, hear a remarkable story of a PatientsLikeMe member who received a life-saving lung transplant after getting a second (and third) opinion, and share your own experience of piecing together your health puzzle.

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PatientsLikeMe names 2018 Team of Advisors

4 Comments / Patient Experiences / By

  CAMBRIDGE, Mass., December 14, 2017—PatientsLikeMe has named 13 members to its 2018 Team of Advisors, a patients-only group that collaborates with the company on new research and product development, advocates on behalf of patients, and provides real-world perspectives to industry and PatientsLikeMe partners. “This is now our fourth Team of Advisors, and its members

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Arthritis by the numbers: 50 million+ Americans live with it

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May is National Arthritis Awareness Month. How many people are living with this condition? 53 million Americans and counting. Various forms of arthritis – including osteoarthritis, rheumatoid arthritis, gout, lupus and fibromyalgia – are all on the rise, according to the CDC. Let’s look at some other facts and stats about arthritis, courtesy of the

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“My experience as a patient and son helps me”: PatientsLikeMe software engineer Alex’s backstory

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Meet Alex Bromley, a PatientsLikeMe software engineer who’s living with gastroesophageal reflux disease (GERD) and whose mother has fibromyalgia. He recently shared some insight on his and his mom’s conditions, his experiences as both a PatientsLikeMe employee and member and what he enjoys outside of work. What first drew you to working at PatientsLikeMe? Can

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What do PatientsLikeMe members think about the Affordable Care Act?

20 Comments / Patient Experiences / By

With a new administration in Washington, the future of “Obamacare” is uncertain. So we wanted to know: What do patients think about potential changes to the Affordable Care Act (ACA)? More than 2,000 PatientsLikeMe members recently shared their thoughts in the largest patient poll on the 2010 health care law. Previous large-scale polls about the

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