As 2009 comes to an end, we want to take this opportunity to thank all of our members, partners and general fans for another great year. Here’s a recap of some of the exciting happenings at PatientsLikeMe these past 12 months. Wishing you all a Happy New Year! Community Milestones This year, the 15+ disease […]
A Year in Review: PatientsLikeMe in 2009 Read More »
The media is abuzz at the moment with stories about social networks like Facebook and Twitter, carrying pieces on the good (Facebook Fan Page raises $10,000 for a Silicon Valley Food Bank), the bad (Facebook users are leaving out of mistrust and boredom), and the controversial (Social networking site for living organ donors). In the
Harnessing “New Media” for Patient Advocacy Read More »
There are rare diseases, and there are rare diseases. Here at PatientsLikeMe our first community was built for patients with ALS (estimated US Prevalence: 30,000), and in common with our other neurological communities there is a familiar list of challenges: low public awareness, little funding for research, and a lack of adequate treatments. However, over
Rare Diseases: Well-Done Online Read More »
When most people think of Parkinson’s disease (PD), they think of a shuffling gait, a shaky hand, and slowness of movement. As awareness has increased of the non-movement symptoms of PD, such as hallucinations and depression, we’ve seen the psychological consequences the disease can have too. More recently, studies in the scientific literature have been
Gambling in online PD patients higher than previously reported Read More »
It’s Parkinson’s Awareness Month. As we continue to spread the word about this condition, we wanted to tell you a little bit more about our PatientsLikeMe Parkinson’s community. Launched two years ago this month, the community has steadily grown to include more than 3,400 patients. Below are some interesting facts about the community, as well
Parkinson’s Disease: Real-World Data, Real-World Experiences Read More »
You raised your voice, we listened. Today we launch our newest community: Fibromyalgia. This is the first in our special blog series, Voices of Fibromyalgia. The impact of the disease on people’s lives can be enormous. People often have difficulty completing even the easiest of tasks during the painful episodes, while the fatigue can also
Introducing: Voices of Fibromyalgia Read More »
