February 2009

A new gene for ALS: What sharing your genetics could mean for research

15 Comments / ALS, Patient Experiences, Rare Diseases, Research / By

In today’s issue of the journal Science two papers describe the discovery of a new gene for ALS (you can read the abstracts here and here). Around 90% of ALS cases are sporadic, i.e. we don’t know what causes them, but for 5-10% of patients the disease runs in their family (known as familial ALS, […]

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Patients Like Me Can Run 13.1 Miles With Fibromyalgia

Fibromyalgia / By

13.1 grueling miles.  A half marathon.  Running that distance for anyone is a challenge that takes months of training and dedication.  Imagine running that distance having fibromyalgia. My close friend and PatientsLikeMe member, Minnie Lee, has fibromyalgia and courageously ran in the Surf City Half Marathon last Sunday.  This wasn’t even her first time running

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