The Value of Openness: The PatientsLikeMe Blog

Did you make a health-related New Year’s resolution?  And are you using technology—such as a smartphone app or website—to achieve your goal?  Create a short video about it, and you could win prizes ranging from $250 to $2,000 if your video is selected as one of the best!

Sponsored by the US Department of Health and Human Services (HHS) and conducted via Challenge.gov, the Healthy New Year Video Challenge invites you to create a compelling video (2 minutes or less) about a New Year’s resolution for improving your health or that of a loved one, and how you will use technology to achieve your resolution.

“In order to empower individuals to be more active partners in their health, they need access to their information and tools they can use,” said Farzad Mostashari, M.D., Sc.M., national coordinator for health information technology.  “We are excited to harness the creativity of ordinary Americans to help promote the positive impact of the myriad health information technology tools and services on health and health care.”

For PatientsLikeMe members, you’re already using technology (meaning, our online health community!) to monitor and improve your health.  Here are some sample resolutions involving PatientsLikeMe that might make for a great video submission:

• Enter my complete health data at PatientsLikeMe so that I can spot correlations and patterns on my profile charts.
• Find out what PatientsLikeMe members with the same condition(s) are doing about a symptom that’s frustrating me.
• Chart my daily moods using PatientsLikeMe’s InstantMe survey to see what factors are affecting my mental health.
• Add my Lab and Test results at PatientsLikeMe so that I – and others like me – can learn from them.

All video submissions are due on Friday, February 16th, at 5:00 p.m. EST, so start brainstorming.  The idea is to inspire, motivate and educate others in a unique way, as all winning videos will be featured at HeathIT.gov.  For more details and contest guidelines, visit the contest website.

New to Health 2.0? Join the 125,000+ others at PatientsLikeMe to find information and support from those just like you – and begin monitoring your health with a host of tools and measurements. Cheers to health and technology in 2012!

Did you know that yesterday was Fibromyalgia Awareness Day?

The PatientsLikeMe Fibromyalgia community is growing exponentially with more than 3400+ members just five months after its launch!  Many  of our members are feeling newly empowered by their membership in our community and are attending events, wearing pins and ribbons and taking the time to spread awareness about what it’s like to live with fibromyalgia.

This sharing mirrors the sharing they do on the site. At PatientsLikeMe, members build their profiles by sharing information about their condition, such as symptoms and treatments.  Top treatments cited to date include rest, heating pads, walking, stretching and the drug Lyrica.  The most commonly listed symptom is pain, followed by fatigue, memory problems and lower back pain.  In addition to sharing health information, patient members also share their personal experiences and tips with each other.  In our forum these past few months, patients have discussed all kinds of topics, including finding the right doctor, coping with pain and fatigue and how to explain how they really feel to their friends and family.

With all this sharing, patients are learning more about themselves, helping each other better understand this condition, and improving their overall quality of life. In fact, in a recent survey amongst some of our members with fibromyalgia, 85% of our respondents agreed or strongly agreed with the statement - “I feel better about myself because of the recognition by others at PatientsLikeMe that my condition is real.”

If you are not already sharing and learning with other patients like you, we invite you to join our community here at PatientsLikeMe.

Ars Electronica - one of the foremost centers for art and technology - honored PatientsLikeMe at their annual festival with the Award of Distinction. The Prix Ars Electronica is one of the most prestigious prizes in the fields of media, technology, animation, and interactive art.

This year, there were a record number of submissions with 4,056 overall.  More than 220 online communities were competing in the newest category: Digital Communities. Previous winners in this category include Wikipedia, Free Software Foundation and Akshaya.net.

While PatientsLikeMe has been honored and cited for its innovation in the area of health and medical research, we were thrilled to be recognized directly for our social and artistic value. Central to PatientsLikeMe, and what drew many of us to work here, is our commitment to empower individual patients to become informed, engaged participants in both their own healthcare and in the creation of new scientific knowledge. This prize attests to our contribution in this area.

At PatientsLikeMe, as an inter-disciplinary team of researchers, designers, and engineers, we are building a platform for patients to both share and use health data.  Our goal is help patients leverage their own experiences to make good decisions and improve outcomes.  As a research scientist here, it is exciting to see how our carefully designed tools engage patients to record, reason with and apply data to inform all types of medical decisions.

So, it was a particular honor for me to be able to travel on behalf of PatientsLikeMe to Ars Electronica in Linz, Austria to accept this award focused on the social and creative value of the online communities for patients. I presented PatientsLikeMe to an international audience and the audio is available as a podcast on their site. Relationships with these new audiences and the resulting discussions help us continue to improve tools for patients to share and leverage data to improve outcomes.

I came across this Wall Street Journal article earlier this week which details how patients with life-changing illnesses are using online services such as EmergingMed to help them enroll in clinical trials. The article points out that only 3% of adult cancer patients participate in trials, citing lack of awareness as a crucial factor. They write:

“studies show that the more likely culprit is ignorance… 85% of cancer patients were either unaware or unsure at the time of their diagnosis that participation in clinical trials was an option.”

In addition, there are also systematic flaws in the disjointed way that trials take place which makes it difficult to get accepted into a trial and can make participation unsatisfying even if you do. Say you’ve got ALS (Lou Gehrig’s disease or Motor Neurone Disease), a progressive and incurable life-changing illness and you’re being treated at a specialist centre that runs a lot of clinical trials. Here’s a few scenarios that could happen:

1. The Drug X trial is full before you can participate. Even if you’re suitable for a trial, it’s a matter of chance as to whether you’ll be seen at the hospital during their recruitment window. National, online databases which store shared medical data prospectively could help ensure a fairer system which gave equal opportunity to eligible patients.

2. The Drug Y trial is only looking to recruit a specific subset of patients so you’re not eligible. Maybe you’re eligible for a trial in the next state and they’re desperate for more participants; national trial registries would open up access and make it easier for researchers to recruit all types of patients quickly.

3. The Drug Z trial is an existing drug being used off-label. After taking the drug for 12 months your rate of progression has been slowed significantly and you wish to continue taking the drug. Although the study gets published in an academic journal, it’s not taken that seriously because it wasn’t a double-blind randomized control trial. If patients are willing to continue taking a treatment off-label with the agreement of their primary care physician, the use of an outcomes-sharing site like PatientsLikeMe provides an ongoing opportunity to monitor adverse events and perhaps even evaluate efficacy at little cost (bearing in mind the caveats and biases of such an approach).

Some members of the medical establishment might say “Well, patients don’t really have a choice. Take it or leave it”. But that’s no longer the case. As our project charting off-label use of lithium in ALS shows, patients are increasingly taking control of their own personal research. Patients are also going the distance to take part in clinical trials they feel offer them the most hope. Our map of ALS patients with a Synapse diaphragm pacing implant shows the distances they have traveled to have the experimental procedure at Case Western in Cleveland, Ohio.

In order to accomplish their goals, clinical trial recruitment will have to change. PatientsLikeMe is playing an active role in driving these changes through from the bottom-up by encouraging patients to share information and take control of their own management. By partnering with organizations running nationwide clinical trials, we want to make it so that clinical research is something you do jointly with patients, not to them.