4 posts tagged “Lyme disease”

Turning blue for Myalgic Encephalomyelitis Awareness

Posted May 12th, 2014 by

Did you know that today is International Awareness Day for Chronic Immunological and Neurological Diseases (CINDs)? CINDs include fibromyalgia, Gulf War Syndrome, Multiple Chemical Sensitivities, Lyme disease and Myalgic Encephalomyelitis (also know as Chronic Fatigue Syndrome or ME/CFS).

ME/CFS is tough to diagnose because there are no tests for it, and other conditions can cause very similar symptoms. Plus, no one knows exactly what causes ME/CFS, and although it is most common in women in their 40s and 50s, it can occur in both genders at any age.1

So why blue? May12.org is encouraging all advocates to turn a part of their body blue for ME/CFS awareness – you can dye your hair (or wear a wig), paint your nails and even Photoshop yourself. Or, just wear a blue t-shirt 🙂 Check out their Facebook page and their website for more information on ME/CFS awareness, and don’t forget to submit your blue photos!

If you’re looking for more resources on ME/CFS, PatientsLikeMe member Jen has been working on a film called “Canary in a Coal Mine,” that we shared about on the blog back in October. The film is currently in production after a successful Kickstarter campaign, but you can still check out the official website and the video below to learn how you can help change the face of ME/CFS.

 

On PatientsLikeMe, more than 10,000 people are living with ME/CFS, and they’re sharing their health data by tracking symptoms and evaluating treatments. If you’ve been experiencing ME/CFS, connect with others like you in the fibromyalgia and ME/CFS forum and speak with the people who know what you’re going through firsthand.

 Share this post on twitter and help spread the word for ME/CFS Awareness Day.


1 http://www.nlm.nih.gov/medlineplus/chronicfatiguesyndrome.html


May 12th, International Awareness Day for Chronic Immunological & Neurological Diseases

Posted May 12th, 2013 by

Did you know that May 12th was chosen for International Awareness Day for Chronic Immunological and Neurological Diseases (CIND) because it’s also Florence Nightingale’s birthday? She was a statistician, social reformer and is credited as the founder of modern nursing. It’s also believed that she suffered from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). That’s just one of the several conditions highlighted on International Awareness Day. Some others are…

May 12

May12.org is hosting a 2013 Awareness campaign on their Facebook page that you can participate in right from home. They’re also encouraging everyone to help spread the word by calling local representatives and asking family members to participate.