Lyme disease

Turning blue for Myalgic Encephalomyelitis Awareness

Chronic Fatigue Syndrome, Patient Experiences / By

Did you know that today is International Awareness Day for Chronic Immunological and Neurological Diseases (CINDs)? CINDs include fibromyalgia, Gulf War Syndrome, Multiple Chemical Sensitivities, Lyme disease and Myalgic Encephalomyelitis (also know as Chronic Fatigue Syndrome or ME/CFS). ME/CFS is tough to diagnose because there are no tests for it, and other conditions can cause very similar […]

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May 12th, International Awareness Day for Chronic Immunological & Neurological Diseases

Patient Experiences / By

Did you know that May 12th was chosen for International Awareness Day for Chronic Immunological and Neurological Diseases (CIND) because it’s also Florence Nightingale’s birthday? She was a statistician, social reformer and is credited as the founder of modern nursing. It’s also believed that she suffered from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). That’s just one

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Searching for a Diagnosis: An Interview with Lyme Disease Patient Pampe

8 Comments / Fibromyalgia, Patient Experiences, Rare Diseases / By

Getting the right diagnosis can take many years, or in the case of PatientsLikeMe patient Pampe, many decades.  After experiencing her first Lyme disease symptom in 1973, it was not until 2012 that she finally received a diagnosis that explained her many symptoms.  Discover what hindered the process and what’s she learned along the way

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One for All: Ways You Can Share, Find and Learn at PatientsLikeMe

2 Comments / ALS, Chronic Fatigue Syndrome, Conditions, Epilepsy, Fibromyalgia, HIV/AIDS, Mental Health, Multiple Sclerosis, One for All, Organ Transplants, Parkinson's Disease, Rare Diseases / By

When patients join our site, a common question we get is, “Now that I’ve signed up, what can I do here?” One answer is that you can chart the real-world course of your disease and compare it against other patients. But that sounds a little complex, doesn’t it? If we break it down into simpler

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