2 posts tagged “E-Patient Dave”

E-Patient Dave’s Top Internet Resources

Posted February 23rd, 2012 by

Blogger, Author, Keynote Speaker and Cancer Survivor E-Patient Dave, Also Known as Dave deBronkart

We first introduced you to E-Patient Dave – a well-known blogger, author and keynote speaker in the healthcare space – last summer.  Given our similar views on many health matters, we see a lot of E-Patient Dave at the conferences and events we attend.  Case in point, our President and Co-Founder Ben Heywood was on a panel with him at the Military Health System Conference just a few weeks ago.

For this particular “high-speed” panel, each speaker was given just 12 minutes to share their story.  So what did E-Patient Dave do?  Exactly what any good digital age citizen would:  he covered the important things and then directed people to his website to find all the related websites and resources.  Given that he’s a cancer survivor and e-patient advocate who believes in “letting patients help,” we were curious what links E-Patient Dave recommends for others who are seeking to take control of their health and join the e-patient movement.

Here’s a sampling of Dave’s top resources along with a brief description:

All About the E-Patient Movement, and Its Founder, Dr. Tom Ferguson (“Doctom”)

Other Resources for the Budding E-Patient

(See Dave’s full list of resources here.)

What about all of you e-patients out there?  Do you have any Internet resources that other patients should know about?  Share your own recommendations in the comments section.

p.s.  In December, E-Patient Dave stopped by our office to talk to the team during our weekly Journal Club luncheon.  Stay tuned for a podcast of what he shared with us.


Let Patients Help: The Undying Mission of E-Patient Dave

Posted July 18th, 2011 by

“Patients know what patients want to know.”
Dave deBronkart

Bloggerauthor and international keynote speaker Dave deBronkart is a familiar name at PatientsLikeMe, as his writings and health talks tend to strike a chord with us.

You see, “E-Patient Dave,” as he calls himself, has a story that underscores exactly why we founded PatientsLikeMe. After being diagnosed with Stage IV kidney cancer, Dave faced a grave prognosis. He read that the median survival for his condition was just 24 weeks from diagnosis. Then he joined a social network for cancer patients and learned of a treatment called interleukin-2 that most patients never hear about. Happily, this treatment would eventually save his life.

Today, E-Patient Dave is a healthy fellow as well as an outspoken advocate for many things we support. For example, he believes patients are “the most underutilized resource in healthcare,” and that patients should have access to their own medical data. He argues that only with complete data can a patient crack the code on his or her own health situation. As co-sponsors of the Declaration of Health Data Rights in 2009 and proponents of our own unique Openness Philosophy, we wholeheartedly agree.

To learn more about Dave’s remarkable story, as well as his plea to the medical world to “let patients help,” check out his recent TEDx Talk below.  (If you’ve never heard of TED or TEDMED, it’s another concept we support because of how it generates ideas and stories that produce “wow” another core value of our company.  Our Co-Founder Jamie Heywood has even appeared on their stage for his own TEDMED talk.)

Finally, here is a powerful anecdote from E-Patient Dave about how other patients continued to help him throughout treatment.  ”The side effects of interleukin-2 are, as the American Cancer Society puts it, ‘often severe and rarely fatal,’” he says.   “That statement left me pretty powerless, so I collected 15 firsthand stories from my patient peers who had the treatment.  And when my side effects hit the first was uncontrollable chills and shaking I knew what is was.  I knew what to expect, and I knew how other patients like me had gotten through it.”