January 2013

A Study by Northwestern University School of Medicine Links Psoriasis to Obesity in Children

It’s no secret that being overweight comes with health risks like diabetes, high blood pressure, high cholesterol, stroke and heart attack. After a new study, researchers from Northwestern University School of Medicine in Chicago are closer to adding psoriasis to the list. However, the study did not conclude if psoriasis influences obesity or visa versa. […]

A Study by Northwestern University School of Medicine Links Psoriasis to Obesity in Children Read More »

PatientsLikeMe’s Jamie Heywood Talks with INSEAD Knowledge

“That’s why we built PatientsLikeMe, to lower the cost of discovering new treatments and to measure and understand disease. Together, this community can help reduce the time to determine what works.” –Jamie Heywood While attending the 2012 INSEAD Healthcare Alumni Summit in London last fall, PatientsLikeMe Co-Founder and Chairman Jamie Heywood sat down with INSEAD

PatientsLikeMe’s Jamie Heywood Talks with INSEAD Knowledge Read More »

Coping with Changes in Physical Appearance

When you are diagnosed with a life-changing illness, your doctor may prepare you for how the disease will affect your physical functions.  But as our members point out, patients also need to be prepared for the changes in physical appearance they may experience.  For example, how do you deal with hair loss, facial swelling, weight

Coping with Changes in Physical Appearance Read More »

New Efforts Underway to Improve Care for Veterans

With financial support from UCB, the Department of Veterans Affairs and PatientsLikeMe will study patient-reported outcomes. CAMBRIDGE, Mass. — Jan 22, 2013 — Today, the U.S. Department of Veterans Affairs’ Epilepsy Centers of Excellence (ECoE), biopharmaceutical company UCB and health data-sharing website PatientsLikeMe announce a new study to better understand what factors improve health outcomes for veterans with

New Efforts Underway to Improve Care for Veterans Read More »

Psoriasis, Adherence and More: An Interview with Dermatologist Dr. Steve Feldman

Dr. Steve Feldman, MD, PhD, is Professor of Dermatology, Pathology & Public Health Sciences at the Wake Forest University School of Medicine. The author of more than 500 peer-reviewed medical articles, Dr. Feldman is well-known for his research studies focused on patients’ adherence to topical treatments as well as for founding www.DrScore.com, an online doctor

Psoriasis, Adherence and More: An Interview with Dermatologist Dr. Steve Feldman Read More »

A Brief History of AKU, the First Genetic Disease Discovered

Last week, we announced that we are creating the first open, global registry for alkaptonuria (AKU), in collaboration with the AKU Society.  You may not have heard of this extremely rare disease – which causes a severe, early-onset form of osteoarthritis – but it plays an important role in the history of genetic diseases.  In

A Brief History of AKU, the First Genetic Disease Discovered Read More »

Navigating the Healthcare System with Disabilities

Are medical facilities prepared to meet the needs of disabled individuals?  It would seem reasonable to think so, but according to PatientsLikeMe members, that’s not always the case. For example, consider the case of a female patient using a powered wheelchair who doesn’t have the upper body strength to transfer herself out of the chair. 

Navigating the Healthcare System with Disabilities Read More »

A Day in the Life of Health Data and Drug Information Clinical Specialist David Blaser

What’s it like to work at PatientsLikeMe?  We are continuing to reveal just that with our ongoing blog series “A Day in the Life,” which features PatientsLikeMe employees from different departments.  Today we’d like to introduce you to David Blaser, PharmD, a registered pharmacist who decided to trade his white lab coat for the more casual

A Day in the Life of Health Data and Drug Information Clinical Specialist David Blaser Read More »

PatientsLikeMe and AKU Society to Develop World’s First Open Registry for Alkaptonuria Patients

Online Patient Network to Connect Patients With Rare Disease, Create Valuable Data for Research CAMBRIDGE, Mass. — January 9, 2013 — PatientsLikeMe and the AKU Society are working together to create the first open, global registry for patients with alkaptonuria (AKU), one of the world’s rarest diseases and the first genetic disease discovered. Nicknamed “black

PatientsLikeMe and AKU Society to Develop World’s First Open Registry for Alkaptonuria Patients Read More »

Write a Love/Hate Letter to Your Thyroid for Thyroid Awareness Month

Do you love your thyroid?  Do you hate it?  Or more importantly, do you even know where it is? A small, butterfly-shaped gland located at the base of the neck (just below the Adam’s apple), the thyroid influences the function of the heart, brain, liver, kidneys and skin.  That’s why it’s so important to know

Write a Love/Hate Letter to Your Thyroid for Thyroid Awareness Month Read More »

Scroll to Top