Introducing: Voices of Fibromyalgia
You raised your voice, we listened. Today we launch our newest community: Fibromyalgia. This is the first in our special blog series, Voices of Fibromyalgia.
The impact of the disease on people’s lives can be enormous. People often have difficulty completing even the easiest of tasks during the painful episodes, while the fatigue can also be debilitating. Many patients with fibromyalgia struggle with presenteeism at work which can lead to disciplinary action or worse.
It’s time to take a stand. We have decided to build this fibromyalgia community because we want to capture the realities of this disease and give patients a voice. We want to research it and understand how it affects people’s lives. We want to use this data and the community to create awareness about the disease and settle the “debate” about the validity of the condition.
Let your voice be heard. Join the PatientsLikeMe fibromyalgia community, share your experiences, and let’s work together to advance the knowledge of this disease.
I have had fibromyalgia for many years, but no doctor could catch it. I thought I had arthr. Three months ago, I took my own action and started looking up information myself. Then I talked to my doctor. She couldn’t deny what I’d found and put me on pain medicine. I heard about patentslikeme on the news one night and dove into it. I am SO excited to find this and know there really are other people out there like me.
Thank you
Constance
Comment by Constance Pipperr — December 8, 2008 @ 7:18 pm
Wow!! This is good news! Opening a society called Voices of Fibromyalgia is sounds terrific! More power to you guys!!
Comment by fibromyalgia — April 19, 2011 @ 7:08 am