At PatientsLikeMe, we strive to put the interests of you, the patient, first in everything we do. After all, you are the customers of the healthcare industry, and you deserve to have a say about the products and services created for you.
Unfortunately, your needs and opinions often haven’t had the influence on the decision-making processes of insurance companies and pharmaceutical manufacturers. Medical providers have often underserved you in favor of competing interests and more revenue.
The good news is times are changing. Your voice, the patient voice, is coming to the forefront, where it should be. Every day new companies approach us asking, “How can I connect with patients? I need to know what they think and what they’re feeling. I want to improve their health outcomes.” These are the partners we want to work with because they are committed to using your insights to change the very nature of healthcare. And their numbers are growing.
Here are two examples of how you have already impacted their decisions:
- How do we make this treatment easy for patients to use? A pharmaceutical manufacturer approached us with several options for a new drug’s packaging. Over 650 of you spoke up in a survey, picking the most user-friendly choice based on your experience. Guess which packaging the pharmaceutical company went with? The one the majority of you liked.
- How do we help patients distinguish their symptoms? Another pharmaceutical company wanted to help patients like you understand your symptoms better so you could seek appropriate treatment. By partnering with PatientsLikeMe, they found the solution. 58% (n=221) of patients like you surveyed said that the tools developed by PatientsLikeMe helped you better understand your symptoms and outcomes. That insight has led to even more projects – and they really want to hear from you now!
Thanks to all of you who gave input in these surveys. There will be more opportunities to be heard soon, so keep it up. The world is finally listening!