PatientsLikeMe

How Digitization Helps Patients Become Their Own Health Advocates

Patient Experiences / By

The COVID-19 pandemic has changed many aspects of people’s lives, including health care. Many physicians and practices were forced to transition from traditional, in-person doctor’s visits to telehealth appointments. Only under more extreme or necessary circumstances were patients allowed in-person visits, and often times they were forced to go to those visits alone and without …

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“It just makes sense to give back”: How PatientsLikeMe employees volunteered their time this year

Patient Experiences / By

Volunteering is a big part of the culture at PatientsLikeMe. Inspired by PatientsLikeMe members, who have made our online community a place to find support and answers about health, we do our best to give something back to our local community, too. This year, many of our staff members pitched in and gave their time …

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“Everyone needs a “Me too!” moment” – Member Shannon on exposing her truth

Conditions, Multiple Sclerosis, Patient Experiences / By

“With every part of me that becomes less than what it used to be, a different part of me usually becomes more than what it used to be. In fact, maybe that’s the point, but it doesn’t make it any less difficult.” Shannon (Sna2164) is a wife, mother, animal lover and writer, living in southern California. She was officially …

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We the Patients: New PatientsLikeMe poll finds a unified voice on a U.S. health care plan

1 Comment / Conditions, Patient Experiences / By

Repeal? Replace? Revise? While politicians have spent months debating the details of a U.S. health care plan, a recent poll of 2,755 PatientsLikeMe members has found that patients are largely aligned about components of a strong plan for the country.   “Despite the partisan divide in Congress about what should be included in a health …

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“Our countries have come together, but our people have not”: PatientsLikeMe’s Margot shares her story

1 Comment / Patient Experiences / By

Margot Carlson Delogne is the Vice President of Communications at PatientsLikeMe. She is also the child of an American soldier lost at war. This Memorial Day we wanted to show how she’s working on her own healing process, but also repairing some of the divide left in the aftermath of the Vietnam War. In December …

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It’s Clinical Trials Day, and patients are driving change

6 Comments / Patient Experiences, Research / By

Today is Clinical Trials Day – celebrated to bring more attention to public health and also to recognize the contribution of the patients and healthcare professionals who make clinical research possible. At PatientsLikeMe, it’s members who are changing the way clinical trials are designed. Bringing the patient voice to clinical trials has long been part …

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“There were so many people asking the things that I was too afraid to ask”

Multiple Sclerosis, Patient Experiences / By

It’s the 10-year anniversary of the MS community, and we’re sharing a story from one of our members, Jackie (OldSalt). Jackie was diagnosed with relapsing-remitting multiple sclerosis (RRMS) in 2007 and more recently, her condition transitioned to secondary progressive MS (SPMS). She found PatientsLikeMe in 2008 and believes that being part of the site over …

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World Parkinson’s Day: Meet Eileen, a PatientsLikeMe researcher with a passion for PD

Conditions, Parkinson's Disease, Patient Experiences / By

Today is World Parkinson’s Day, and 2017 marks the 200th anniversary of the identification of Parkinson’s Disease (PD). Meet Eileen Mack Thorley, a research scientist with a passion for PD research. By day, she works on a variety of research projects at PatientsLikeMe. On her own time, you might find her doing FaceTime with her …

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Largest Patient Poll on ACA Shows Patients Value Health Care Law More Than the General Population, Are Less Inclined to Want a Repeal

Research / By

Lowering Costs, Coverage for Pre-existing Conditions Remain Top Priorities; If Changes Are Required, Individual Mandate Should Go   CAMBRIDGE, Mass., February 7, 2017—As Congress and the White House continue to discuss potential changes to the Affordable Care Act (ACA), PatientsLikeMe revealed results from the first large-scale poll to assess patient priorities for the health care …

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