PatientsLikeMe at the Parkinson’s Unity Walk

Posted April 28th, 2008 by

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PatientsLikeMe was a proud sponsor of the 14th Annual Parkinson’s Unity Walk in New York City this past Saturday (April 26, 2008). Jeff Cole, Kate Brigham, Maureen Oakes and I (Lori Scanlon) were all onsite working at our sponsored booth. The event, which raised more than $1.3 million in donations this year, brought together thousands of people with Parkinson’s, their families and friends, support groups, non-profits and sponsoring organizations — all dedicated to advancing research and helping find a cure.

dsc00783.JPGI said this onsite and I’ll say it again: The energy at the event was absolutely intoxicating! In addition to meeting hundreds of people who stopped by our booth to learn more about PatientsLikeMe, we were thrilled to finally meet some of our very own Parkinson’s Community members (and their families) face-to-face for the first time.

“Unity” is the perfect word to describe this event. We got to literally see thousands of people in the same place with the same goal, and it was nothing less than inspiring. We got to meet our members, who not only share their health information and experiences so openly on our site, but also opened their arms to welcome us “in”…it touched us alldsc00788.JPG truly and deeply. We got to “feel the love,” as our members wore badges to represent those members who couldn’t be there. We then came home and read forum posts from the many more members who were at home watching us on the webcast and cheering on the walkers.

Here are a couple of many photos from the Unity Walk. Please take it all in. There was sunshine. There was energy. The smiles. The laughs. The love. The purpose. Can you feel it? Can you feel the (comm)unity? Good. Now, please pass it on…

PatientsLikeMe member lscanlon


6 Comments

  1. Great to see everyone so involved and a great write up and shows we are real people with an devasting disease but we will prevail and thank you PLM for being a part of our lives and being there for each and every one of us. Again a great article thank you Lori
    lee

  2. HAY! EVERYONE DID A ENORMOUS JOB FOR THE UNITY WALK. I WANT TO THANK ALL THOSE THAT WERE INVOLVE PERSONALLY AND THOSE INVOLVED SPIRITUALLY. GREAT WRITE UP. THANK YOU LORI. YOU ARE AS VERY WINSOME LADY, BESIDES THATYOU CAN WRITE. I AM VERY IMPRESSED. I FEEL BLESSED THAT I GOT TO MEET YOU ALL, AND EVEN MORE BLESSED THAT YOU ARE ON OUR TEAM. HUGS, DIXIE PIXIE

  3. Thank you Lori for sharing your wonderful story and pictures of the unity walk. I wasn’t able to attend due to health reason’s.
    Sincerly
    Debra

  4. It was a glorious day.I send 1 million roses to our staff.You guys are awesome there energy & endless smiles are unbelievable.They are very knowledgeable & lovable.Lori is about 10 feet tall{dont let pictures fool you}Maureen,Jeff & Kate are like energizer bunnies.They made the whole day complete and everyone should be proud!!!!Tom

  5. Thanks for the kind words, all! I was thrilled to be part of the Walk, and can’t wait until our paths cross again. Tom – I’m definitely only 5 feet, but you’re sweet for saying differently 🙂

    All my best,
    Lori

    Photo caption insert: Tom and others from our community are posing in the photo above with PatientsLikeMe staffer, Maureen Oakes.

  6. I will never be able to thankyou for that glorious day. Here it is almost a month later and I am just now coming down just a little. Everyone should be so blessed to have friends like all of you. I can shut my eyes and see Lori’s little girl smiling and waving at me. More of us will be there next year and hopefully with some answers to this disease. Look out Jeff,if your there next year you get a special hug for being so shy……love ya POKIE (Charlene Pryor)

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