CAMBRIDGE, Mass.— March 19, 2013—PatientsLikeMe appoints Kim Goodwin and Sally Okun RN to two newly-created positions that will keep patient needs upfront as the company continues to enhance its website and drive industry and government to make more patient-centric decisions. Kim Goodwin has been named Vice President (VP) of User Experience (UX) and Sally Okun has […]
Today’s guest post is written by PatientsLikeMe Vice President for Advocacy, Policy and Patient Safety Sally Okun, RN, MMHS. Getting health care can often feel like you’re trying to put together a difficult jigsaw puzzle, only to find that some of the pieces are missing. Even under the best circumstances, navigating the health care system is
Creating Your “A Team” for Health Read More »
With more than 500 attendees from 36 countries, the 5th Annual Medicine 2.0 World Congress took place September 15-16th at Harvard Medical School here in Boston. Among these attendees were several PatientsLikeMe leaders, including keynote speaker Jamie Heywood and conference presenters Sally Okun and Paul Wicks. In an unusual twist, all three PatientsLikeMe speakers got
PatientsLikeMe at Medicine 2.0 Read More »
Want to connect with and learn from psoriasis patients like you? Join PatientsLikeMe Now! (It’s free) Are people with psoriasis more likely to cover up with pants and long sleeves in warm weather? Or are they okay with “showing some skin” in shorts and tank tops? This is just one of the things we set
What We’ve Uncovered About Psoriasis in the Summertime Read More »
Last week, we shared our interview with a liver transplant recipient who is living out her dreams post-transplant. Today we’d like to add the insights of 32 organ transplant recipients who took part in an online discussion hosted by PatientsLikeMe. Split equally in gender with ages ranging from 25 to 60 years old, our discussion
Preparing for Life After an Organ Transplant Read More »
What’s it like to work at PatientsLikeMe? We are continuing to reveal just that with our monthly blog series “A Day in the Life,” which features various employees from different departments. So far, we have profiled Research Scientist Mike Massagli and User Experience Engineer Cris Necochea, and today, we share our interview with Research Assistant Shivani
A Day in the Life of Research Assistant Shivani Bhargava Read More »
FOR IMMEDIATE RELEASE PatientsLikeMe Continues Report Series on Real-World Patient Experiences with Multiple Sclerosis Medications CAMBRIDGE, MA – November 3, 2011 – In the second report of a series on Multiple Sclerosis (MS) disease modifying therapies (DMTs), PatientsLikeMe reveals that MS patients perceive Copaxone as having comparable efficacy and tolerability profiles to the interferon therapies
Philadelphia, the city of brotherly love, provided the perfect backdrop for e-Patient Connections 2011, a two day summit about reaching and engaging both patients and their caregivers in the digital age. Right away conference organizers set the tone that the patient voice should be our focus by introducing respected e-patient bloggers and advocates, such as
What We Took Away from e-Patient Connections Read More »
FOR IMMEDIATE RELEASE TWO OUT OF THREE PATIENTS REPORT DISCONTINUING TYSABRI WITHOUT DOCTORS’ ADVICE PatientsLikeMe Releases First in Series of Reports on Real-World Patient Experiences with Top Multiple Sclerosis Drugs CAMBRIDGE, Mass. — September 22, 2011 — In the first report of a series on Multiple Sclerosis (MS) disease modifying therapies(DMTs), PatientsLikeMe reveals that nearly two-thirds (64%)
TWO OUT OF THREE PATIENTS REPORT DISCONTINUING TYSABRI WITHOUT DOCTORS’ ADVICE Read More »
“I think we can see there are a lot of ways where openness can be powerful. What’s necessary is to help facilitate openness and reduce the barriers to sharing medical information.” – Ben Heywood PatientsLikeMe Co-Founder Ben Heywood has blogged previously about openness and sharing – and how important they are for patients. In this
PatientsLikeMeOnCall™: “A Look Ahead” at Openness in Healthcare (Episode 4) Read More »
