Roller coasters, water slides, tilt-whirls, and Ferris wheels are all exciting ways to spend your summer afternoon, but when you use a wheelchair, these options might not be accessible to you. This does not mean that you should cancel your next trip to a theme park. In fact, The American Disabilities Act has set an […]
4 Theme Park Tips for Physically Disabled People Read More »
If you have a chronic condition, enjoying summertime social events like backyard BBQs can be challenging. The burgers, pasta salads, and custom cocktails are often tempting, but they can trigger your symptoms and lead to health flair-ups. Good news – your dietary restrictions do not have to end all your fun. With just a little
BYO-BBQ: Navigating a Cookout with Dietary Restrictions Read More »
We’re excited to announce the nine members who have been selected to join the 2019 Team of Advisors! This group of active members will be collaborating with PatientsLikeMe in the next year to offer feedback on new research and product development, to advocate on behalf of patients, and provide real-world perspectives to us and our
Meet our 2019 Team of Advisors! Read More »
Looking for ideas for raising more money for an upcoming cancer walk, MS bike ride, or other health-related charity event where you’ll be hitting the streets? Learn more about PatientsLikeMeInMotion! It’s a program that sponsors you and your team as you walk, run, cycle (etc.) with a nonprofit organization to raise funds and awareness for your
Fundraising for a health-related charity walk/run? Get sponsored by PatientsLikeMe! Read More »
Feeling “irregular” on the regular? Constipation is a common issue for people living with multiple sclerosis (MS), affecting as many as 40% of patients. Over 15,000 MS members on PatientsLikeMe report experiencing bowel problems and of those, about 47% have reported it as “moderate” or “severe” – take a look here. With help from our team of
MS constipation blues? See 12+ treatment options Read More »
In a historic move, the U.S. Food and Drug Administration (FDA) recently approved Epidiolex — an epilepsy medication made from purified cannabidiol (CBD), found in cannabis. Read all about it and what it could mean for the future of cannabis-based treatments. As background, see these other recent write-ups we’ve done on medical cannabis/marijuana and CBD. What is Epidiolex?
Epidiolex: First FDA-approved drug made from cannabis component (CBD) Read More »
Do you have difficulty walking or getting around? Have you considered using a wheelchair, walker or cane? Making the decision to use a walking or mobility aid can be difficult. You’re not alone. Here, PatientsLikeMe member Cathy living with multiple sclerosis shares about how she overcame the fear of losing her independence and how using a cane is
Staying mobile with assistive walking devices: Member Cathy weighs in Read More »
Ever feel confused or overwhelmed after a doctor’s appointment? Forget to ask important questions or bring up new symptoms? Covering all of your concerns in a 30-minute appointment can be tricky. MS community member Cathy can relate — read on to see how she’s learned to make the most of her appointments and check out her
How to prepare for a doctor’s appointment: 7 tips from member Cathy Read More »
As Women’s History Month comes to a close, take a look at the gender gap in health care and how the centuries-old notion of “hysteria” may still taint women’s experiences today. History of “hysteria” Turns out, there’s nearly 4,000 years worth of evidence that people believed women’s illnesses stemmed from the uterus or sexual issues. An Egyptian
Is there a medical gender gap? The not-so-brief history of sexism in medicine Read More »
Before you were diagnosed with your condition, how long did you live in “limbo” with your symptoms and what was that like? Living with the unknown is a common part of the patient experience — PatientsLikeMe data shows that people with a wide range of health conditions live with their symptoms for several months or
Pre-diagnosis limbo: “I knew something was wrong” Read More »
