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Parkisnon's Speech

Let’s talk: Parkinson’s disease, speech changes + communication issues

Conditions, Parkinson's Disease, Patient Experiences / By

Parkinson’s disease can cause your voice to become raspy, quiet or unsteady, and motor symptoms can make writing and typing more difficult. Have you experienced communication issues like these? See what others have tried — from Lee Silverman Voice Treatment and voice-activated “smart” devices to (drumroll please…) singing classes. How PD can impact communication Parkinson’s […]

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Lupus Awareness Month: Lupus Warrior Jeanette recaps her D.C. advocacy trip

Conditions, Lupus, Patient Experiences / By

In honor of Lupus Awareness Month, meet PatientsLikeMe member Jeanette, who recently traveled to the U.S. Capitol to advocate for lupus research funding. (Psst — here are some ideas on how to “Go Purple” this May and raise awareness of lupus!) “I try to help the world,” says Jeanette Alston-Watkins (JeanetteA6872). The full-time working mom of two

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Virtual house calls? Dr. Ray Dorsey’s promising research on telemedicine for Parkinson’s disease

Conditions, Parkinson's Disease, Patient Experiences / By

What if your next doctor’s appointment involved just booting up your laptop rather than trekking to a clinic or office? Neurologist Ray Dorsey, M.D., M.B.A., is making virtual house calls a reality for people with Parkinson’s disease (PD) and believes “telemedicine” is on the brink of transforming healthcare. “There’s a huge demand for more convenient

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“There were so many people asking the things that I was too afraid to ask”

Multiple Sclerosis, Patient Experiences / By

It’s the 10-year anniversary of the MS community, and we’re sharing a story from one of our members, Jackie (OldSalt). Jackie was diagnosed with relapsing-remitting multiple sclerosis (RRMS) in 2007 and more recently, her condition transitioned to secondary progressive MS (SPMS). She found PatientsLikeMe in 2008 and believes that being part of the site over

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PatientsLikeMe and Shire Pharmaceuticals Collaborate to Study Rare Genetic Diseases

Patient Experiences / By

CAMBRIDGE, Mass.–(BUSINESS WIRE)—PatientsLikeMe and Shire plc (LSE: SHP, NASDAQ: SHPG) have announced a new collaboration that will support the development of a patient-centered, real world health learning system that expands understanding of patient health and disease. Shire, the global leader in rare diseases and other highly specialized conditions, will work with PatientsLikeMe to appropriately engage

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Meet Jim from the PatientsLikeMe Team of Advisors

Multiple Sclerosis, Patient Experiences / By

  We recently announced the 2016-2017 Team of Advisors, and now we’ll be introducing each member so you can get to know them better as they kick off their year-long term. First up is Jim (jangrilah), a member of the MS community. Jim is a new grandfather, a husband and an international executive and leadership development

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PatientsLikeMe Kicks off 3rd Annual “24 Days of Giving”

Patient Experiences / By

People Living With Chronic Conditions Encouraged to Donate Health Data for 24 Days November 29, 2016 – CAMBRIDGE, Mass. – Beginning today on #GivingTuesday, PatientsLikeMe is kicking off its third-annual #24DaysofGiving to celebrate “the tradition of generosity.” Over the next 24 days, PatientsLikeMe is asking members to rally together, rethink what it means to give

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