Search Results for: "The Patient Voice"

From preclinical to approval: How clinical trials bring new treatments to market

Often we hear of new treatments becoming available, but have you ever wondered what each new treatment had to go through to get approved by a regulatory body like the FDA? Before a new treatment is approved for commercialization, it needs to go through a meticulous trial process to prove a number of things: Is […]

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PatientsLikeMe names Greg Ploussios Senior Vice President and General Counsel

CAMBRIDGE, Mass., August 2, 2017—PatientsLikeMe announced today that it has named Greg Ploussios to the newly-created role of Senior Vice President and General Counsel. Prior to joining PatientsLikeMe, Ploussios served as the company’s outside counsel for over a decade, advising and negotiating PatientsLikeMe’s licensing, collaboration and commercial agreements and representing the company in equity financing,

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We the Patients: New PatientsLikeMe poll finds a unified voice on a U.S. health care plan

Repeal? Replace? Revise? While politicians have spent months debating the details of a U.S. health care plan, a recent poll of 2,755 PatientsLikeMe members has found that patients are largely aligned about components of a strong plan for the country.   “Despite the partisan divide in Congress about what should be included in a health

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Senators are currently debating and voting on a national health care plan. What should an American health care plan include? A recent PatientsLikeMe poll of 2,755 members found that while politicians debate the details, patients across the U.S. are largely united. Check out this ranking of the key components, according to patients, and learn how

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It’s Clinical Trials Day, and patients are driving change

Today is Clinical Trials Day – celebrated to bring more attention to public health and also to recognize the contribution of the patients and healthcare professionals who make clinical research possible. At PatientsLikeMe, it’s members who are changing the way clinical trials are designed. Bringing the patient voice to clinical trials has long been part

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World Parkinson’s Day: Meet Eileen, a PatientsLikeMe researcher with a passion for PD

Today is World Parkinson’s Day, and 2017 marks the 200th anniversary of the identification of Parkinson’s Disease (PD). Meet Eileen Mack Thorley, a research scientist with a passion for PD research. By day, she works on a variety of research projects at PatientsLikeMe. On her own time, you might find her doing FaceTime with her

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PatientsLikeMe and Shire Pharmaceuticals Collaborate to Study Rare Genetic Diseases

CAMBRIDGE, Mass.–(BUSINESS WIRE)—PatientsLikeMe and Shire plc (LSE: SHP, NASDAQ: SHPG) have announced a new collaboration that will support the development of a patient-centered, real world health learning system that expands understanding of patient health and disease. Shire, the global leader in rare diseases and other highly specialized conditions, will work with PatientsLikeMe to appropriately engage

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Communicating drug risks/benefits so the message really gets through

Last month, Jim, a member of the PatientsLikeMe Team of Advisors, was invited by Sally Okun, PatientsLikeMe’s VP Advocacy, Policy & Patient Safety, to present at the Drug Information Association (DIA) Pharmacovigilance Conference. He also led a lunch roundtable for drug risk/benefit communications experts. Sally, who also participated on the roundtable panel, says requests for

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Largest Patient Poll on ACA Shows Patients Value Health Care Law More Than the General Population, Are Less Inclined to Want a Repeal

Lowering Costs, Coverage for Pre-existing Conditions Remain Top Priorities; If Changes Are Required, Individual Mandate Should Go   CAMBRIDGE, Mass., February 7, 2017—As Congress and the White House continue to discuss potential changes to the Affordable Care Act (ACA), PatientsLikeMe revealed results from the first large-scale poll to assess patient priorities for the health care

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PatientsLikeMe Partners with iCarbonX and Secures $100+ Million Investment

  CAMBRIDGE, Mass., JANUARY 5, 2017— PatientsLikeMe, the world’s largest personalized health network, has entered into a broad-ranging partnership with digital life company iCarbonX to apply next generation biological measures and machine learning, and accelerate a deeper understanding of the basis of human health and disease. iCarbonX, founded in 2015 by renowned genomicist Jun Wang,

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