Conditions

Living with a health condition? On the PatientsLikeMe blog, find helpful health information and patient stories about being diagnosed, trying different treatments, and living day-to-day with a chronic condition.

CBS Evening News, BusinessWeek, Fibromyalgia: Oh, Just Your Typical Friday

It’s exciting times for PatientsLikeMe! Today, our new community for people with fibromyalgia goes live on our site.  Spread the word!  Let’s bring a new level of understanding to this disease in a way that nobody else can.  Next week: a blog series regarding this new community and the people in it. If you haven’t …

CBS Evening News, BusinessWeek, Fibromyalgia: Oh, Just Your Typical Friday Read More »

National Family History Day

PatientsLikeMe believes in the benefits of openly sharing health information.  That is why we are happy to spread the word about National Family History Day, which had its fifth anniversary on Thanksgiving 2008. As families gather this holiday weekend, National Family History Day encourages families to become familiar with the health history of previous generations.  …

National Family History Day Read More »

Should You Share Your Health Information Online?

Openness.  Privacy.  These philosophies stand in direct opposition in the question of which is better for consumer health.  Should people be open with their health information or private?  Certainly there are times for both, right? Not according to some privacy advocates.  On October 22, 2008, Deven McGraw from the Center for Democracy and Technology cited …

Should You Share Your Health Information Online? Read More »

PatientsLikeMe sponsors MS Challenge Walk on Cape Cod

PatientsLikeMe was recently one of the sponsors for the 2008 MS Challenge Walk on Cape Cod, a three-day, 50-mile event held on September 5-7, 2008. More than 620 walkers participated, each raising a minimum of $1,500.  Overall the event raised close to $1.4 million to benefit Multiple Sclerosis (MS) education, support, advocacy and research. The …

PatientsLikeMe sponsors MS Challenge Walk on Cape Cod Read More »

More Than Meets the Eye: Non-motor Symptoms in Young-onset Parkinson’s Disease

Most people think of Parkinson’s disease (PD) as a condition of aging, and most of the time they’re right. Looking at the population as a whole, about 1-2% of people over the age of 65 have PD, and it’s usually a condition that is most severe in patients in their 70’s and 80’s. However, about …

More Than Meets the Eye: Non-motor Symptoms in Young-onset Parkinson’s Disease Read More »

PatientsLikeMe at the Young-Onset Parkinson’s Network Conference

PatientsLikeMe was a proud sponsor of the National Parkinson’s Foundation Young-Onset Parkinson’s Network (YOPN) Conference in Atlanta, GA last week. The event, coordinated by and for people living with Young-Onset Parkinson Disease (YOPD), was a huge success. Paul Wicks and I (Maureen Oakes) enjoyed working at the booth, meeting many of our current members and …

PatientsLikeMe at the Young-Onset Parkinson’s Network Conference Read More »

Tysabri and the 2 New Reported Cases of PML

Members of our Multiple Sclerosis (MS) community have been discussing this story in the Boston Globe which reports severe adverse events experienced by two European MS patients on the drug Tysabri (Natalizumab). Tysabri is a monoclonal antibody which seems to have a potent effect on MS; the original trial published in the New England Journal …

Tysabri and the 2 New Reported Cases of PML Read More »

Scroll to Top