Conditions

Living with a health condition? On the PatientsLikeMe blog, find helpful health information and patient stories about being diagnosed, trying different treatments, and living day-to-day with a chronic condition.

“We Keep Moving” with the National MS Society of Greater New England

Multiple Sclerosis, Patient Experiences / By

Just on the heels of MS Awareness Month, here’s one more interview with one of PatientsLikeMe’s nonprofit partners.  For this interview, Molly Cotter, who handles Nonprofit Partnership Development at PatientsLikeMe, sits down with National MS Society of Greater New England’s Development Director Todd Krohne to discuss exciting things happening with his chapter, including their new […]

“We Keep Moving” with the National MS Society of Greater New England Read More »

2010 Parkinson’s Awareness Month:
Interview with EnglishTutor

Parkinson's Disease, Patient Experiences / By

What better way to kick-off 2010 Parkinson’s Awareness Month than to bring you “the patient voice.”  At PatientsLikeMe, we believe in getting to know the person, not just the “patient.”  That’s why we interview patients each month in our newsletter to find out more about how they approach life.   We recently featured englishtutor, a

2010 Parkinson’s Awareness Month:
Interview with EnglishTutor Read More »

PatientsLikeMe – Out & About and OnCall

1 Comment / ALS, Chronic Fatigue Syndrome, Epilepsy, Fibromyalgia, HIV/AIDS, Mental Health, Multiple Sclerosis, Organ Transplants, Parkinson's Disease, Patient Experiences, Rare Diseases, Research / By

The PatientsLikeMe team has been traveling around the globe recently talking about the power of real-world patient data in changing healthcare.  You may have heard about our executives at industry conferences, government hearings, or even on TV.  Highlights below. Last month, PatientsLikeMe Co-founder and President Ben Heywood was on Fox Business News talking about how

PatientsLikeMe – Out & About and OnCall Read More »

Celebrating MS Awareness Month:
Interview with Accelerated Cure’s Sara Loud

2 Comments / Multiple Sclerosis, Patient Experiences, Rare Diseases / By

It’s MS Awareness Month and we’re excited to bring you information from our nonprofit partner, Accelerated Cure Project for MS.  We briefly mentioned the Accelerated Cure Repository in our blog interview with Devic’s patient, Gracie.  We thought we’d take the opportunity to ask The Accelerated Cure Project for MS a bit more about the repository

Celebrating MS Awareness Month:
Interview with Accelerated Cure’s Sara Loud Read More »

Capture and Share Your Transplant Journey

Organ Transplants, Patient Experiences / By

Following up on last week’s launch of the PatientsLikeMe Transplants Community, we present you with the next in our podcast series – PatientsLikeMe OnCallTM:  Transplant Community Walk-Through.  Podcast host, Aaron Fleishman, interviews Product Manager Maureen Oakes about new and upgraded functionality rolled out with the launch of this transplants community. Topics covered in this podcast

Capture and Share Your Transplant Journey Read More »

Multiple Sclerosis Awareness Week: Interview with Gardener

1 Comment / Multiple Sclerosis, Patient Experiences / By

It’s National Multiple Sclerosis (MS) Awareness Week.  There are more than 17,400 patients in the PatientsLikeMe MS community sharing data about their symptoms, treatments and side effects, lifestyle modifications and overall health outcomes. In honor of the week, and March being National MS Awareness Month, we will be posting interviews with MS patients and nonprofit

Multiple Sclerosis Awareness Week: Interview with Gardener Read More »

PatientsLikeMe and Novartis Unite to Launch Community for Organ Transplant Recipients

3 Comments / Organ Transplants / By

Recognized by Fast Company as two of the 50 Most Innovative Companies in the World, PatientsLikeMe and Novartis have united to launch a new community for organ transplant recipients (including kidney, lung, heart and liver).  In the news release announcement, PatientsLikeMe President Ben Heywood and Novartis CEO Joe Jimenez discuss what impact this community could

PatientsLikeMe and Novartis Unite to Launch Community for Organ Transplant Recipients Read More »

Where are the Cures?
An interview with Myelin Repair Foundation

5 Comments / ALS, Chronic Fatigue Syndrome, Epilepsy, Fibromyalgia, HIV/AIDS, Mental Health, Multiple Sclerosis, Parkinson's Disease, Patient Experiences, Rare Diseases, Research / By

PatientsLikeMe partner, Myelin Repair Foundation (MRF), is a nonprofit organization devoted to reducing the time it takes to discover and develop treatments for multiple sclerosis (MS) patients.  Recently, the MRF launched a campaign called “Where are the Cures?” – a site dedicated to a greater understanding of the barriers slowing the discovery and development of

Where are the Cures?
An interview with Myelin Repair Foundation Read More »

Scroll to Top