Diabetes

2014 recap – a year of sharing in the PatientsLikeMe community

Another year has come and gone here at PatientsLikeMe, and as we started to look back at who’s shared their experiences, we were quite simply amazed. More than 30 members living with 9 different conditions opened up for a blog interview in 2014. But that’s just the start. Others have shared about their health journeys in short videos and even posted about their favorite food recipes. A heartfelt thanks to everyone who shared their experiences this year – the PatientsLikeMe community is continuing to change healthcare for good, and together, we can help each other live better as we move into 2015. Team of Advisors In September, we announced the first-ever PatientsLikeMe Team of Advisors, a group of 14 members that will work with us this year on research-related initiatives. They’ve been giving regular feedback about how PatientsLikeMe research can be even more helpful, including creating a “guide” that highlights new standards for researchers to better engage with patients. We introduced everyone to three so far, and look forward to highlighting the rest of team in 2015. Meet Becky – Becky is a former family nurse practitioner, and she’s a medically retired flight nurse who is living with epilepsy and …

2014 recap – a year of sharing in the PatientsLikeMe community Read More »

Food for thought: Diabetes awareness edition

It’s American Diabetes Awareness Month, and the American Diabetes Association’s (ADA) theme for November is “America Gets Cooking to Stop Diabetes.” And in that spirit, we’re highlighting the diabetes community on PatientsLikeMe. Members have been sharing about pasta, low-carb diets and ideas for daily menus. Plus, one member graciously shared her personal recipes for some of her favorite dishes – read them in the infographics below. What’s the diabetes community sharing about? “Usually a meal of pasta and meat sauce in moderation a couple of times a month sopped up with toasted sourdough garlic bread (1 good slice) is usually enough to satisfy one’s pasta cravings. Provided you tow the line on everything else you eat you should recover from a pasta meal within 3 hours of eating it!” -Diabetic neuropathy member “I eat no starches. That is, no bread, no chips, no rice, no pizza, no potatoes, no tortillas. I severely restrict the amount of root vegetables I eat. Occasionally, I’ll have a little bit of beans. I eat very little fruit, maybe a slice or two of tomato on a burger or an occasional strawberry.” -Diabetes type 2 member “Instead of scrambled eggs, I make tofu scramble with …

Food for thought: Diabetes awareness edition Read More »

Recognizing diabetes in America

If you’re from the United States, chances are you know someone with diabetes – according to the American Diabetes Association (ADA), nearly 30 million Americans are living with diabetes, and many of them haven’t been diagnosed yet. That’s why November is American Diabetes Month. It’s all about raising awareness for both type 1 and 2 diabetes and educating everyone about risk factors, symptoms, healthier lifestyles and more. Diabetes affects different people in different ways. For those living with type 1, the body doesn’t make enough insulin. And for people diagnosed with type 2, the body cannot use insulin properly. Type 1 is typically diagnosed in children, teens and early adults, while type 2 can be developed at any age. Check out the CDC’s infographic on the left to get a snapshot of diabetes in the United States.1 Managing blood sugar is a part of living with diabetes, and to help foster awareness, the ADA has created a “America Gets Cooking to Stop Diabetes” campaign and designated each day of the week for a specific activity. It’s a great way to get involved – check out the factsheet here. If you’re sharing about American Diabetes Month on social media, add the …

Recognizing diabetes in America Read More »

Results! PatientsLikeMe diabetes members share about challenges and concerns

Earlier this year, more than 450 PatientsLikeMe members from the type 1 and type 2 diabetes communities took part in a new survey from our partners at Kaiser Permanente Colorado’s Institute of Health Research. (Thank you all for adding your voices!) Members shared about everything from the day-to-day challenges of living with diabetes to the difficulties of communicating with their doctors.   This is real-world, patient reported health data doing good; helping others living with diabetes learn more from people just like them and showing researchers where to focus their efforts in the future. Click here to view the results. Share this post on twitter and help spread the word for diabetes.    

Healthy meal on table

Food for Thought: Recipes, Diets and Tips

What’s for dinner? Does this phrase haunt you the same way it does us? It is hard to come up with something to eat for every meal each day, especially if you have dietary restrictions due to your condition. If you feel like you are stuck in a meal rut, the PatientsLikeMe community is here to offer up some healthy and easy recipes! Everyone’s got a favorite dish (pizza is one of ours), and many PatientsLikeMe members like to share their favorites across our condition-specific forums. So we decided to create a mini virtual cookbook by highlighting some of the hottest – or maybe the coolest, if you like gazpacho – conversations from PLM. Get inspired for your next meal by reading through what people are saying in different condition communities. Fibromyalgia forum thread: What did you make for dinner tonight? “Leftover sage and rosemary soup – I added mushrooms and scrambled egg batter. Stirred until cooked, added sea salt and pepper. Yummy!” If you are looking to warm up and calm down with an easy soup recipe, try this protein-rich lentil soup from the USDA’s healthy recipe finder. “I LOVE to make crockpot lamb shanks and salad. The crockpot …

Food for Thought: Recipes, Diets and Tips Read More »

Are you at risk? American Diabetes Association Alert Day

  According to the American Diabetes Association (ADA), over 25 million people are living with type 2 diabetes in the United States, and 7 million aren’t even aware they have the condition. What’s more, 79 million people have prediabetes, a condition that can include several symptoms of diabetes.1 Do you know if you’re at risk for type 2 diabetes? Today is American Diabetes Association Alert Day, and it’s all about learning and recognizing risk factors. Take the ADA’s online diabetes risk test to learn if you’re at high risk – it’s fast, free and easy. The ADA’s official fact sheet is also full of useful information about diabetes and today’s activities, including Step Out walks and Alert Day Center education events. Visit the ADA’s website to find an event in your area. Living with type 2 diabetes can involve many lifestyle changes, so if you’ve been diagnosed, are living with prediabetes or are at high risk, visit the PatientsLikeMe type 2 diabetes community to check in with your fellow patients and learn how they manage their condition. You can post questions in the forum and get answers from others living with diabetes, check treatment reports to see what people are taking …

Are you at risk? American Diabetes Association Alert Day Read More »

Diabetes, behavioral changes and a surprise donation: An interview with Melinda Maryniuk, MEd, RD, CDE, FADA

Diabetes Alert Day is just around the corner, and to get a jump start on raising awareness for this chronic condition, we recently caught up with Melinda Maryniuk. She’s the Director of Clinical Education Programs for the Joslin Health Solutions division within Joslin Diabetes Center. Her areas of special interest include nutrition, patient education, behavior change, and increasing access to quality diabetes education services. (Check out her full bio at the end of this post.) Melinda spoke with us about how she got her start in diabetes education, what she wished more patients knew and her philosophy behind behavioral changes. Can you tell us a little about how you became interested in dietetic education? Growing up, I had always seen myself as a schoolteacher. But when it came to choosing a major in college, my dad pushed me to be some kind of scientist (I don’t remember why) even though I was not particularly interested (or good at) the subject! After changing majors multiple times (medical technology…biology…) and feeling completely without direction – my mom asked me a really important question. What do you like to do most? When I answered “eat” – she suggested I consider being a dietitian. …

Diabetes, behavioral changes and a surprise donation: An interview with Melinda Maryniuk, MEd, RD, CDE, FADA Read More »

Uniting for World Diabetes Day and American Diabetes Month

Diabetes is one of the most widespread conditions in the world.1 Globally, more than 370 million people are living with diabetes, including over 25 million in the United States alone.2 And throughout November, the American Diabetes Association (ADA) will raise awareness about everything diabetes, from risk factors and genetics to proper diet and blood sugar testing. The International Diabetes Federation (IDF) has also named today, November 14th, World Diabetes Day, and now is the time to start sharing your experiences with both type 1 and type 2 diabetes. Diabetes mellitus sometimes gets lumped into a singular condition, but as you probably know, there are actually two very different kinds of diabetes, labeled type 1 and 2 (There is a third type, known as gestational diabetes that can sometimes occur during pregnancy but is not necessarily permanent). Type 2 is by far the most common, and the IDF’s website has a great infographic explaining the basics. So what’s going on this month? Both the ADA and the IDF are coordinating a ton of ways to promote diabetes awareness during November, and if you’re unsure where to begin, here are a few ideas to check out:   Submit your photo of “A Day in …

Uniting for World Diabetes Day and American Diabetes Month Read More »

Scroll to Top