January 2016

“I had no idea that my thyroid controls so much” — PatientsLikeMe member Barbara shares her experience for Thyroid Awareness Month

Conditions, Patient Experiences / By

January is Thyroid Awareness Month. So, how much do you know about the small, butterfly-shaped gland that influences the way your heart, brain, liver, kidneys and skin function? To help spread #thyroidawareness, we asked member Barbara to tell us about living with thyroid cancer and hypothyroidism, a condition that affects over 6,000 PatientsLikeMe members. Barbara […]

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CHSG founder Chris Hannah shares how he tracks cluster headaches on PatientsLikeMe

Conditions / By

In an interview last June, Chris Hannah, the founder of Cluster Headache Support Group (CHSG), discussed his experience with and thoughts on cluster headaches, clinical trials and more. We recently caught up with Chris to learn how he uses PatientsLikeMe to manage his condition, and the advice he gives to others living with cluster headaches.

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“I try my best to make the most of each new day”– An interview with ALS member Brian

ALS, Conditions / By

Brian (Dunric) is a former game developer and has been living with ALS since 1998. Unable to find a local ALS support group where he lives in Lodi, CA, he discovered PatientsLikeMe in 2012. In a recent interview, Brian opened up about dealing with the uncertainty of his condition the best way he knows how

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Meet Jeff from the PatientsLikeMe Team of Advisors

Conditions, Parkinson's Disease / By

Say hello to Jeff, another member of your 2015-2016 PatientsLikeMe Team of Advisors. Since he was diagnosed with Parkinson’s disease (PD) 20 years ago, Jeff does his best to stay active—in both exercise and advocacy. Keeping up with his two teenage daughters is challenging enough, but when he’s up to it, Jeff also golfs, plays

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Meet Craig from the PatientsLikeMe Team of Advisors

1 Comment / Conditions, Fibromyalgia, Patient Experiences / By

We recently sat down with Craig, one of your 2015-2016 PatientsLikeMe Team of Advisors. Craig is living with fibromyalgia and severe degenerative disc disease, the result of a serious car accident in 1978. Craig is active on PatientsLikeMe and other online communities, where he adds his voice to discussions about chronic pain, healthy living and

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“It is definitely a daily challenge” – An interview with PTS member Holden

Conditions / By

Holden Montgomery (holdenmonty), an administration support technician for the Air Force Space Command, was deployed to Afghanistan in 2010 and later diagnosed with PTS, depression, and anxiety. He joined PatientslikeMe in March 2015, where he’s been connecting with other vets and sharing how he copes with his conditions. We recently caught up with Holden, and

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#CervicalHealthMonth: Member Laurie opens up about living with cervical cancer

Conditions, Patient Experiences / By

Every year, more than 12,000 women in the U.S. are diagnosed with cervical cancer. And every January, the National Cervical Cancer Coalition (NCCC) kicks off Cervical Health Awareness Month. In honor of #CervicalHealthMonth, we asked Laurie (lroz57), who joined PatientsLikeMe in 2012, to tell her story. Laurie was given a 50/50 chance of survival when

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“Do not give up, find a reason to keep going.” – An interview with ALS member Lee

ALS, Conditions, Patient Experiences / By

Humor and a passel of grandchildren keep Lee (slicky) going. He’s been living with ALS for nearly three decades and refuses to let his condition get the best of him. Now retired, he delights in his family and is very active in our forums – welcoming new members, doling out information and sharing his positive

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