Open Access Archives |

The Importance of Open Access: An Interview with Patient Advocate Graham Steel

5 Comments / ALS, Chronic Fatigue Syndrome, Conditions, Epilepsy, Fibromyalgia, HIV/AIDS, Mental Health, Multiple Sclerosis, Organ Transplants, Parkinson's Disease, Patient Experiences, Rare Diseases, Research / By patientslikeme

A native of Glasgow, Scotland, Graham Steel is a longtime “Guest Researcher Member” of PatientsLikeMe. Following the death of his brother Richard at the age of 33 from a rare condition known as variant Creutzfeldt-Jakob Disease (vCJD), Graham became involved in patient advocacy work, and most recently, in lobbying for open access to published scientific […]

The Importance of Open Access: An Interview with Patient Advocate Graham Steel Read More »

What We’re Reading at PatientsLikeMe

Mental Health, Organ Transplants, Patient Experiences / By patientslikeme

Here are some of the media items that grabbed our attention recently. What Air Traffic Can Teach Us About Kidney Transplants Air traffic rules balance fairness and efficiency. Can organ waitlists do the same? Open Access Is Not for Scientists. It’s for Patients. A guest blog post by our R&D Director, Paul Wicks, for the

What We’re Reading at PatientsLikeMe Read More »

Free Up Research! On Our Way to 25,000 Signatures

5 Comments / Patient Experiences, Research / By patientslikeme

Have you heard about the petition launched to the White House asking for all federally funded research to be freely accessible over the Internet? We’ve signed it and here’s why… Today, government-funded research (that’s research paid for with your tax dollars) is often something you can have access to in published scientific journals, but for a

Free Up Research! On Our Way to 25,000 Signatures Read More »