55 posts tagged “jamie heywood”

How does ALS make you feel #InThreeWords?

Posted May 17th, 2017 by

May is ALS awareness month and this year, we’re joining the ALS Therapy Development Institute to share how ALS makes us feel, #InThreeWords.

Sad, determined, frustrating as hell – just a few of the words PatientsLikeMe staff chose. Want to get involved? Check out what PatientsLikeMe staff had to say, including a video from our co-founder, Jamie Heywood.

PatientsLikeMe co-founder Jamie Heywood

 

Jenna Tobey, Manager, Customer Strategy and Value

 

Kate Brigham, Director, Design

 

Margot Carlson Delogne, VP, Communications

And, check out 2016-2017 Team of Advisor member Cris’ three words:

What are ALS members saying in the forum? 

 

“Enraged, alone, afraid”

– Kzueger 

“Uninvolved, sorrowful, useless”

mbond0623

“Frustrated, compassionate, claustrophobic.”

jimig

“Frustrated that I can’t stop this disease, overwhelmed at times by the losses created by ALS and grateful for kindness of others”

bountiful

“Helpless, angry, pissed off.”

MsJLB

 

Let’s spread the word and end ALS together.

 

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You helped us reach our goal for #24DaysofGiving!

Posted December 30th, 2015 by

That’s right, you did it again! A big thank you to the PatientsLikeMe community for helping us reach our #24DaysofGiving goal for the second year in a row. Together, you donated 476,243 health data points!  We’ll be making a $20,000 donation to Make-A-Wish® Massachusetts and Rhode Island to help fund life-affirming wishes for seriously ill children.

The final numbers? Check them out:

  • 28,998 treatment reports
  • 117,948 symptom reports
  • 122,249 health outcomes

To show our appreciation for all that you’ve done, we wanted to do something special in return. We made a video featuring some PatientsLikeMe staff talking about why your data donation matters. You’ll hear from co-founders Ben and Jamie Heywood, CEO Martin Coulter and team members from all parts of PatientsLikeMe.

From all of us at PatientsLikeMe, thank you for re-thinking what it means to give this holiday season.

Data for you. For others. For good.

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