May is ALS awareness month and this year, we’re joining the ALS Therapy Development Institute to share how ALS makes us feel, #InThreeWords.
Sad, determined, frustrating as hell – just a few of the words PatientsLikeMe staff chose. Want to get involved? Check out what PatientsLikeMe staff had to say, including a video from our co-founder, Jamie Heywood.
And, check out 2016-2017 Team of Advisor member Cris’ three words:
What are ALS members saying in the forum?
“Enraged, alone, afraid”
“Uninvolved, sorrowful, useless”
“Frustrated, compassionate, claustrophobic.”
“Frustrated that I can’t stop this disease, overwhelmed at times by the losses created by ALS and grateful for kindness of others”
“Helpless, angry, pissed off.”
Let’s spread the word and end ALS together.
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