48 results for “pulmonary fibrosis”

September is Global Pulmonary Fibrosis Awareness Month

Posted September 28th, 2015 by

If you hadn’t already heard about September being named Global Pulmonary Fibrosis Awareness Month by The Pulmonary Fibrosis Foundation (PFF), there are still two days for you to join in and help spread the word.

What does “global awareness” mean?

Pretty much just what it sounds like. It’s spreading awareness so that everyone around the world knows what PF is. If you’re living with it, you won’t have to explain it to those around you anymore. If you’re not, you’ll have an idea of what those with PF are going through.  And it means that we all make a unified commitment to improve the lives of patients through resources, research, and the development of new treatments.

How can you help?

Global also means everyone. Including you.

There are many ways you can get involved in raising awareness among family, friends, healthcare professionals, colleagues, neighbors, leaders in your community and anyone else in your life through the end of the month. (Hint: You can start by sharing this blog!)

You can “Blue-It-Up” if you want. For this social media challenge, draw attention to PF by putting blue in your hair, wrapping blue ribbon around your trees or visiting a spa for a blue mani-pedi with some friends and then sharing your pictures online with #BlueUp4PF.

Feel free to post your #BlueUp4PF pictures and share your own experiences within the PatientsLikeMe community. We’ll post some of the responses on our Facebook and Twitter to raise awareness.

For more information and ideas on how to participate, visit www.globalpfawareness.org. Thanks for sharing!

Let’s raise awareness, together.

Share this post on Twitter and help spread the word.


Shining the spotlight on pulmonary fibrosis

Posted September 17th, 2014 by

 

You may have seen our post on Pulmonary Fibrosis Awareness Day, but did you know September is also Pulmonary Fibrosis Awareness Month? The Pulmonary Fibrosis Foundation (PFF) wants everyone to shine the spotlight on idiopathic pulmonary fibrosis (IPF), and many PatientsLikeMe members have already shared their stories – Lori documented her journey from diagnosis to transplant in a 4-part blog interview series, along with Barbara and John.

We also wanted to pause for just a minute to recognize PatientsLikeMe member Bryan. He joined the community in 2013 after being diagnosed with IPF and was an inaugural member of our Team of Advisors.

We are sad to share that last month, Bryan passed away, and all of our thoughts are with his family, friends and fellow PatientsLikeMe community members. But even though Bryan may no longer be with us, his memory and data live on. The experiences he shared will help drive change in IPF and in healthcare. We can think of no better way to pay tribute than to share his recent video with everyone. Bryan, you will be missed.

In Memoriam
Bryan Kincaid


(1947-2014)