tremor

Art as Therapy in Parkinson’s Disease

Do you have a creative outlet that helps you cope with your health condition?  Here are two examples of Parkinson’s disease (PD) patients in our community who are expressing their emotions through painting, despite hand tremors and other challenging symptoms.  (See even more PD patient artwork in this inspiring forum thread.) “Iggy the Iguana” by PD member mezzomom “Autumn Still Life with Mouse” by PD member J. Marley If you’re a PD patient with an artistic bent, we encourage you to share your work with our community.  You may also want to participate in the Parkinson’s Disease Foundation’s Creativity and Parkinson’s Project, which “exists to explore, support and encourage the therapeutic value of creativity in Parkinson’s.”  Paintings, drawings, photographs, songs, crafts and more are displayed in the project’s Gallery of Artwork, and a wall calendar is created each year featuring the work of 13 selected artists. Notice of Copyright: The works of art featured in this post are displayed with the written consent of the artist and/or current owner. These parties retain exclusive rights of reproduction and distribution. Any unauthorized reproduction or download of content in any form is a violation of the artist’s copyright and is prohibited.

Life with Parkinson’s Disease: What We’ve Learned

On Tuesday, our interview with blogger Steve Ploussard of “Attitude & Fitness Wins” revealed how one person is managing his Parkinson’s disease (PD).  Today we take a closer look at this progressive neurological condition using the data and experiences shared by our 5,920 PD members. Taking a look at the makeup of our PD community, 52% are male, and 48% are female.  More than 98% identify PD as their primary condition, and just shy of 20% report experiencing their first symptom between the ages of 50 and 59.  Others report experiencing their first symptom anywhere from adolescence to their seventies.  (See the chart for a complete breakdown.)  What exactly are the symptoms of this condition?  Some of the most commonly reported include stiffness/spasticity, slowness, sexual dysfunction, memory problems, excessive daytime drowsiness and constipation. As Steve’s interview revealed, Carbidopa-Levodopa (Sinemet) is one of the most commonly prescribed treatments for PD as it helps to control tremors, one of the most visible manifestations of the disease, and other movement dysfunctions.  Currently, more than 1,698 members report taking this medication, and 300+ of them have submitted Sinemet treatment evaluations, which review the drug’s effectiveness, side effects, dosage, cost and more.   Here’s what one …

Life with Parkinson’s Disease: What We’ve Learned Read More »

“A Mile and a Candle” for World MSA Day

Today, October 3rd, is World MSA Day. MSA stands for multiple system atrophy, a degenerative neurological disorder that causes symptoms similar to Parkinson’s disease. As a result, it is included in a group of diseases called “Parkinson-plus syndromes,” which have the classical symptoms of Parkinson’s (such as tremor and stiffness) as well as additional physical and mental features. In addition, these diseases typically do not respond to Parkinson’s treatments. The theme for this year’s World MSA Day is “A Mile and a Candle.” All around the globe, MSA activists will be lighting a candle today at 8:00 p.m. local time for one hour. Participants are being asked to light a candle for each person they know who is living with MSA or has been lost to MSA. As candles are lit across every continent, a virtual 24-hour wave of light will be created as it moves from time zone to time zone. In addition, activists will be walking a mile (or more) in honor of MSA, then reporting their mileage on the “A Mile and a Candle Counter Page.” The goal is to tally enough miles from enough participants to equal 24, 901 miles, which is the circumference of the …

“A Mile and a Candle” for World MSA Day Read More »

How Would You Evaluate Your Experience with Muscadol?

Muscadol is an international brand of medication that combines acetaminophen, a widely used analgesic (pain reliever), with orphenadrine citrate, a skeletal muscle relaxant. It is used in the treatment of muscle spasm and tremors associated with various musculoskeletal conditions. At PatientsLikeMe, where more than 120,000 patients are sharing their experiences with conditions, symptoms, treatments and more, only one patient reports using Muscadol in a dosage of “100 mg as needed.”  Given the prevalence of musculoskeletal conditions – including fibromyalgia, sciatica and herniated disc disorder – we know there are many others who may have tried Muscadol to relieve their symptoms. If you’ve been prescribed Muscadol or another anti-spasm/anti-tremor muscle relaxant, we encourage you to share your experiences (including side effects, dosage, effectiveness, cost and more) to help other patients.  PatientsLikeMe’s unique data-sharing platform allows you to share detailed data about all types of treatments, interventions and lifestyle modifications that have helped you or simply had no effect. JOIN PATIENTSLIKEME TODAY Have you taken Muscadol?  Join PatientsLikeMe and add your experiences to our growing body of knowledge.  Then, stay to exchange advice and support, research common treatments and learn from other patients like you.

Parkinson’s Disease: Real-World Data, Real-World Experiences

It’s Parkinson’s Awareness Month. As we continue to spread the word about this condition, we wanted to tell you a little bit more about our PatientsLikeMe Parkinson’s community. Launched two years ago this month, the community has steadily grown to include more than 3,400 patients. Below are some interesting facts about the community, as well as an interview with one of our members (“PokieToo”) giving her real-world experience of living with condition. WHAT’S IT LIKE LIVING WITH PARKINSON’S DISEASE (PD)? Meet PokieToo.  A long-time member of our PD community, she tells us how she continues to “look for the sunshine” while “taking 30 pills a day.”   “Out there for the next person,” PokieToo gives us a glimpse of the real-world experiences of living with Parkinson’s disease. DID YOU ALSO KNOW… More than 1,500 of our patient members are 50-yrs old or older 140+ of our patient members have inherited Parkinson’s disease (PD), and a handful of people have the less common drug-induced Parkinsonism and Vascular Parkinsonism Approximately 10% of our patient members (or 331) are Young-Onset Parkinson’s patients; that is, they report having experienced their first symptom before the age of 40. How are our members treating their condition? Patients …

Parkinson’s Disease: Real-World Data, Real-World Experiences Read More »

Scroll to Top