29 posts tagged “side effects”

It’s Self-Care Day! 7 “pillars” for taking care of you

Posted 2 months ago by

Today is International Self-Care Day. There’s even a Senate resolution designating July 24 as a day to recognize the importance of self-care in the U.S. (it’s on 7/24 because, ideally, it should be a focus 24/7 for everyone). Has your self-care — from diet and hydration to hygiene and hobbies — been slipping because of competing priorities? Bring it back into focus with these “seven pillars” recommended by health care experts – plus some easy TLC ideas from your fellow member, Laura.

What are the “7 pillars”?

The International Self-Care Foundation has developed what it considers The Seven Pillars of Self-Care:

Pillar 1 – Knowledge and health literacy: Finding health information and ways to understand it so you can make appropriate health decisions

Pillar 2 – Mental well-being, self-awareness and agency: Getting health care screenings; “knowing your numbers” for important stats like body mass index (BMI), cholesterol and blood pressure; and keeping tabs on your mental health

Pillar 3 – Physical activity: Staying as fit as possible (talk with your doctor about a healthy exercise plan that works with your condition)

Pillar 4 – Health eating: Keeping a nutritious, balanced diet

Pillar 5 – Risk avoidance or mitigation: Quitting tobacco, limiting alcohol use, getting vaccinated, practicing safe sex and using sunscreen

Pillar 6 – Good hygiene: Bathing, washing your hands, brushing your teeth, cleaning your produce and taking other food-safety steps

Pillar 7 – Rational and responsible use of care products and services: Knowing the guidelines and possible side effects or dangers of medications and services (prescriptions, over-the-counter meds, alternative or natural health products), and working with a health care professional to plan how to use these things safely

Many of these fit well with the mission and resources of PatientsLikeMe, so remember to keep tracking your conditions, symptoms, treatments and more in your profile.

Laura’s tips for TLC

PatientsLikeMe Team of Advisors member Laura — who’s living with bipolar disorder and PTSD — wrote a piece to share her 5 tips for self-care with the mental health community. She says self-care is “paramount” in living with multiple chronic conditions.

For Laura, “self-care is really about utilizing the five senses in an attempt to make you feel better, or at least to bring you to a more manageable spot until you can talk with a doctor or therapist.” So her self-care practice includes cool things like adult coloring pages, massage, singing/listening to music and more activities that deliver some “zen.”

What questions or advice do you have about self-care? Add a comment below or, better yet, join PatientsLikeMe to swap ideas with the community here in the forum!

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“Seesawing Libidos”: A podcast for Parkinson’s Awareness Month

Posted April 11th, 2016 by

April is Parkinson’s Awareness Month, and this year we’re getting personal.

Seesawing libidos,” an episode of WBUR Boston’s Modern Love podcast, explores an unexpected side effect of a Parkinson’s medication: an overactive sex drive. The story comes from comedian Marc Jaffe, whose wife Karen was diagnosed with Parkinson’s 15 years into their marriage.

Before Karen’s diagnosis, Marc was the one with the stronger libido, but their roles would reverse after she started her medication. Compulsive behavior was a side effect, and in Karen’s case, it manifested as hypersexuality. Marc shares, “Those pills would change our lives more than Parkinson’s.”

Eventually, Karen was able to channel her obsessive behavior into fundraising and advocating for Parkinson’s. Check out the podcast to hear more of Marc’s reflections on how a medication could affect his marriage in such an intimate way.

Have you ever experienced a side effect that changed your personal life? How did you cope? Jump in the forum and share your story.

 

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