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“Myeloma has not affected my day-to-day life” – PatientsLikeMe member AbeSapien shares his experience during Multiple Myeloma Awareness Month

March is Multiple Myeloma Awareness Month, and to keep the awareness going strong, we’re sharing our recent interview with PatientsLikeMe myeloma community member Bob, also known as AbeSapien. The happily-married, long-time data processing expert spoke about his diagnosis experience with myeloma, the economic effects of his condition and his passion for horseback riding.     Your PatientsLikeMe username, AbeSapien, is a reference to a comic book character – can you tell us a little about the meaning behind it?  The movie Hellboy had been out fairly recently. It’s one of about three that we throw in to watch regularly (the others being Van Helsing and League of Extraordinary Gentlemen). The character Abe Sapien fits my personality as a straight man, although I’m not above throwing in a dose of sarcasm when the situation calls for it. Multiple myeloma can be challenging to diagnosis – what was your diagnostic experience like? When did you first start experiencing symptoms? I actually did not exhibit any symptoms until just before I started treatment. I was diagnosed with MGUS (Multiple Gammopathy of Undetermined Significance) in 2001 when a blood test taken during an annual physical showed above normal levels of the IgG protein. At that point my condition was …

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Stand up and be counted during National Multiple Sclerosis Education and Awareness Month

  Here at PatientsLikeMe, every experience counts, whether you’ve just been diagnosed, are trying a new treatment, or managing your symptoms. This month, we’re standing up and focusing on Multiple Sclerosis (MS), a neurological condition that affects 2,500,000 people around the globe—including more than 400,000 in the United States.1 To help raise awareness about MS, the Multiple Sclerosis Foundation (MSF) and its partners have named March “National MS Education and Awareness Month.” Together, we can stand up and help those living with MS be counted. There are many different awareness activities you can participate in over the next few weeks. You can also submit a photo to the MSF as part of their “MS Awareness: Make It Count” contest. You’ll need three things: A camera (still or video) Lots of people wearing the color orange (here’s a picture of the PatientsLikeMe team) A homemade sign that says “SUPPORT THE MULTIPLE SCLEROSIS FOUNDATION – BECAUSE MS COUNTS!” If you’ve been recently diagnosed with MS, check out our MS patient interviews and blog posts. And you could also join more than 33,000 people with MS at PatientsLikeMe – it’s one of the largest communities on the site, and there are always some great …

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Tell one person about multiple myeloma in March

There’s a lot of healthcare awareness going on in March, everything from multiple sclerosis and brain disease to diabetes. March is also known as Multiple Myeloma Awareness Month, and from now until April, the International Myeloma Foundation (IMF) is getting the word out with their “Tell One Person” campaign. And that’s really all you have to do, just tell one person about the facts of multiple myeloma. So what are the facts? Multiple myeloma, often referred to as myeloma, is the second most common blood cancer worldwide. There are over 100,000 people currently living in the U.S. with multiple myeloma, and around 20,000 new patients will be diagnosed every year1 “Multiple” is used because it is a cancer of the plasma cells and can occur at multiple sites in the body Although several treatment options are available, there is unfortunately no cure This month, there are plenty of ways to focus on multiple myeloma, especially how it affects patients on a day-to-day basis. You can post the IMF’s flyer in your office or a public place, change your Facebook profile picture to this awareness ribbon and ask your town or organization to officially declare March Multiple Myeloma Awareness Month. If …

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