You can make a difference in April

Eight years ago this April, the PatientsLikeMe Parkinson’s disease (PD) community launched, and now, more than 12,500 people are sharing about what it’s like to live with PD. What better way to recognize this awesome community than to participate in Parkinson’s Disease Awareness Month? Listen to Leslie Chambers, the president and CEO of the American Parkinson’s Disease Association (APDA), explain the facts about PD in the video below: As she says, 60,000 people worldwide will be diagnosed with PD in 2015 – that averages out to 164 people every day, or one person every nine minutes. This April, it’s not just about the 12,5,000+ PatientsLikeMe members living with PD, or the 60,000 people who will be diagnosed in 2015 – it’s about everyone who is living and has ever lived with PD, and all their family, friends and colleagues who have been affected. You can make a difference. The APDA is running a “30 days, 30 ways” campaign all month long, so be sure to check their website daily to learn how to get involved. The Parkinson’s Disease Foundation is also participating in raising awareness, and they’ve created a great toolkit to get you started. And don’t forget to share …

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Today’s Photo: Shake, Rattle and Roll

The heat isn’t letting up this summer – but that isn’t stopping our members from participating in disease-related walk/run events in their local communities. For inspiration, please meet some of the members of Parkinson’s disease patient daddytom’s team, who joined together to raise money and show solidarity at a Shake, Rattle and Roll Run sponsored by the American Parkinson Disease Association in Texas.  From left to right are Connie, Paula, Dorothy and Larry (the latter wearing blue PatientsLikeMeInMotion t-shirts) as they triumphantly cross the finish line. Congrats to daddytom and all of our PatientsLikeMeInMotion-sponsored teams for your efforts to raise funds and awareness for your condition. We’re honored to support you every step of the way.  For more PatientsLikeMeInMotion team photos, check out our growing Flickr collection. Thinking about organizing a team for this fall?  Learn more about the PatientsLikeMeInMotion program today.

Tell the World: Daddytom Shares His Experiences with Parkinson’s

To continue our series in honor of Parkinson’s Awareness Month, here’s another interview to bring you “the patient voice.”   We recently featured this interview with three-star member daddytom in the April edition of our Parkinson’s Community newsletter. Read on to learn what he has to say about finding courage, recognizing mentors and raising awareness about the disease. * * * (Amy) Where do you find courage? (Daddytom) I don’t know if I have ever really thought about where I get courage from.  Tough question.  I find courage from several sources.  One is my faith in God.  I believe he is always here with me and only wants the best for me.   Can he cure Parkinson’s disease? Yes I believe he can.  Will he cure Parkinson’s disease?  I do not think so.   I think we are all given different trials throughout our lives.  And how we handle these trials makes us either stronger or weaker.I also get courage from my bride of 30+ years.  She is my best friend and confidant.   I can tell her my troubles and cares and she will listen.  And I get my courage from my support group and from PatientsLikeMe.   There is always someone facing worse …

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