What kinds of things do we cover in our monthly newsletters for members? Take a look at the excerpt below from our August edition. Also, in case you didn’t know, anyone – whether a PatientsLikeMe member or not – can view our current and past newsletters in our Newsletter Archive. See what we’ve been up to recently, and if you are member who’s not opted in to the newsletter, sign up today.
MONTHLY MUSINGS
Ever reviewed a product on Amazon? Or rated a restaurant on Yelp? If so, then you know your experiences matter – and that they can help someone else make the right decision.
It’s the very reason there are “treatment evaluations” at PatientsLikeMe. There are so many difficult choices when it comes to treatment. Many of you talk about weighing the benefits and risks when starting, stopping or changing treatments. Oftentimes, this is something you have to revisit repeatedly throughout your journey.
Whether your treatment is working wonders or has no noticeable effects, your treatment evaluation can help so many others like you make up their mind. Got something you’d like to share about your past or present treatments?
– Kate, Emma, Liz, Jeanette & Sharry
JOIN THE CONVERSATON
What’s happening in the forum? Check out some of the recent buzzworthy threads below. Then jump in with your own questions and answers.
- How to eat healthier foods (MS Room)
- What scars do you have? (PatientsLikeMe Room)
- New study about acupuncture (PD Room)
- Is epilepsy a gift or a test? (Epilepsy Room)
- Low dose naltrexone aka LDN (PatientsLikeMe Room)
Need help with something on the site? Visit the PatientsLikeMe Site Help Room for answers from veteran members.
THIS MONTH’S SITE IMPROVEMENTS
Thanks for your awesome feedback as we continue to improve our site. In this section, we’ll keep you up-to-date on new features designed to make your PatientsLikeMe experience even better. Here are our top functionality enhancements for August.
SYMPTOMS, SIDE EFFECTS AND THEIR CAUSES
We’re excited to share some big changes to the way you record symptoms and side effects – all based on your feedback. You told us you wanted to better see the connections between items on your profile. For example, sometimes a symptom may be a side effect of a treatment, or the cause of another symptom, but we didn’t have a good way to show that. Now we do, and we think it’ll allow you to share even more insights.
Check out this screencast for a visual tour of these important changes.
REASONS FOR TREATMENTS AND HOSPITALIZATIONS
In a related change, we’ve made it easier to add the purpose for a treatment or the reason for a hospitalization. Just like adding the cause of a side effect or symptom, you can now add the “why” part of the story without leaving your profile page. Simply click the “plus symbol” icon next to a treatment or hospitalization listed on your profile and type in your answer in the pop-up window. Done!
