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Driving with Parkinson’s disease: Safety considerations + turning over the keys

3 Comments / Parkinson's Disease / By

Are you still driving with Parkinson’s disease? Check out some safety considerations and pointers for determining if it’s time to turn over the keys. Plus, explore how others with PD have handled this tricky topic and see some alternate ways of getting around. Considerations for driving with PD + 7 questions to ask yourself “You […]

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Parkisnon's Speech

Let’s talk: Parkinson’s disease, speech changes + communication issues

Conditions, Parkinson's Disease, Patient Experiences / By

Parkinson’s disease can cause your voice to become raspy, quiet or unsteady, and motor symptoms can make writing and typing more difficult. Have you experienced communication issues like these? See what others have tried — from Lee Silverman Voice Treatment and voice-activated “smart” devices to (drumroll please…) singing classes. How PD can impact communication Parkinson’s

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Drenching Night Sweats - Parkinson's Sweat

Parkinson’s Disease and Drenching Night Sweats? Solutions!

3 Comments / Conditions, Parkinson's Disease / By

PatientsLikeMe members with Parkinson’s disease (PD) have talked a lot about excessive sweating (aka hyperhidrosis) and heat intolerance with Parkinson’s disease. It can be a “stinker,” as one blogger who has PD recently shared in Parkinson’s News Today. Can you relate? Read on for more information and some possible adjustments or life hacks that others have tried.

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Parkinson’s disease + anxiety/depression: Stigma-busting for Mental Health Month

Conditions, Depression, Mental Health, Parkinson's Disease, Patient Experiences / By

Stress. Anxiety. Depression. Have you experienced any of these along with Parkinson’s disease (PD)? As National Mental Health Month comes to a close, we’re highlighting how common these non-motor symptoms and mental health issues are among people with PD. Plus, see some new research on the prevalence of feeling demoralized (vs. depressed) with PD, and

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Spill the beans: How do caffeine and Parkinson’s disease interact?

2 Comments / Conditions, Parkinson's Disease, Patient Experiences / By

Do you crave that cup (or more) of joe each day? Or a spot of tea or chunk of chocolate? Research about caffeine and Parkinson’s disease (PD) has been all over the map. What have studies shown? And what’s the PatientsLikeMe community’s take on caffeine and its effects when you’re living with PD? Take a

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What products help people live better with Parkinson’s disease? A room-by-room round-up

Conditions, Parkinson's Disease, Patient Experiences / By

Over the years, PatientsLikeMe members living with Parkinson’s disease have discussed a lot of products and ideas for living better with PD. From kitchen knives and eating utensils to shoe horns and shoelaces, we’ve compiled a list of tools you’ve talked about for (almost) every room in the house and many different aspects of life.

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A patient’s perspective: member Gary reports back from the FDA public meeting on Parkinson’s disease

Conditions, Parkinson's Disease, Patient Experiences / By

Back in September, Sally Okun, Vice President of Advocacy, Policy and Patient Safety, and community moderator Molly Cotter, attended the FDA public meeting on Parkinson’s disease (PD) along with PatientsLikeMe member Gary (tupelo). We posted some interesting developments from the meeting in the forum, but we also caught up with Gary for his perspective on

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Spotlighted Author: Parkinson’s Humorist Bev Ribaudo on Dispensing Laughter

2 Comments / Parkinson's Disease, Patient Experiences / By

PatientsLikeMe member Bev Ribaudo (“YumaBev”) was diagnosed with Parkinson’s disease (PD) at age 47, but it hasn’t dampened her flair for comedy.  “Humor comes naturally to me, and a little disease like Parkinson’s can’t take it away,” she says. In fact, her condition has given her a new purpose:  entertaining other “Parkies” with her deep

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Listen Up! Here Comes The Patient Voice

1 Comment / Organ Transplants, Parkinson's Disease, Patient Experiences / By

In addition to hearing from you through our PatientsLikeMe newsletters, we sometimes get a chance to meet you in person to hear what you have to say about living with your condition.   Here are two videos highlighting interviews we conducted in 2010 with patients just like you.  In the first video, you’ll hear directly

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Tell the World: Daddytom Shares His Experiences with Parkinson’s

Parkinson's Disease / By

To continue our series in honor of Parkinson’s Awareness Month, here’s another interview to bring you “the patient voice.”   We recently featured this interview with three-star member daddytom in the April edition of our Parkinson’s Community newsletter. Read on to learn what he has to say about finding courage, recognizing mentors and raising awareness about

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