3 posts tagged “poll”

We the Patients: New PatientsLikeMe poll finds a unified voice on a U.S. health care plan

Posted June 14th, 2017 by

Repeal? Replace? Revise? While politicians have spent months debating the details of a U.S. health care plan, a recent poll of 2,755 PatientsLikeMe members has found that patients are largely aligned about components of a strong plan for the country.

 

“Despite the partisan divide in Congress about what should be included in a health care plan there is a singular voice in patients, who are agreed across party lines on the essential foundation for any plan.”

— Sally Okun, PatientsLikeMe’s vice president of Advocacy, Policy and Patient Safety

 

Patients with a variety of conditions and from all 50 states (plus the District of Columbia) participated in the poll May 4-9. The poll launched on the same day that the U.S. House of Representatives voted (217 to 213) to narrowly pass the American Health Care Act (AHCA, sometimes nicknamed “Trumpcare” or “Ryancare”), which would repeal much of the Affordable Care Act (ACA, or “Obamacare”). The AHCA bill is now with the Senate for deliberation, revisions and possibly a vote in the coming days.

Here are some highlights from the poll’s findings and the latest trends in patients’ opinions.

PatientsLikeMe ACA patient poll

The new (May) poll was a follow-up to a January 2017 poll where PatientsLikeMe members weighed in on the ACA/Obamacare. Comparing the responses of those who took both the January and May polls, patients are increasingly in favor of modifying rather than replacing the ACA/Obamacare. Fewer patients believe the ACA “needs a major overhaul” or should be “totally eliminated.”

The 7 must-haves

Patients speak out on health care law

Patients are united — 95% or more of respondents agree that these elements should be included in a national health care plan to “provide essential help to the most people.”

Should states have a choice?

Nearly half (48%) disagree that states should be able to “opt out” of parts of a national health care plan while more than one-third (35%) agree with it. But only 22% agree that their own state should opt out.

Patients speak out on health care law

The strongest opinions about opting out were split along party lines, with more Democrats than Republicans believing states should not be allowed to opt out.

Take action: How to raise the patient voice in 3 steps

Want to share the patient voice with your members of Congress? Click here to go to a “Take Action” page with 3 simple steps to spread the word about the poll results and add your own perspective.

 

“Our hope is that by amplifying the voice of those with the most experience with our health system, we will influence the Senate to construct the best plan for all Americans.”

— Sally Okun

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Loud and clear: The patient voice on the ACA

Posted March 2nd, 2017 by

Have you had chance to check out that poll where 2,000+ PatientsLikeMe members shared their views on the Affordable Care Act (“Obamacare”)? It was the largest patient poll on potential changes to the health care law, and several media outlets are now listening up.

A recent CNBC article called “The human side of the Obamacare debate” featured quotes from those who took part in the poll. Here’s a glimpse of the patient perspective:

“Raising the age of dependent coverage to age 26 was a lifesaver for our daughter. ACA is not perfect as there are stories of those who’ve hated it and it cost them more money in the long run, but there are just as many positive stories of all the people the ACA helped. Health care in this country is big business and complicated. The ACA didn’t uncomplicate it, but it helped many more Americans have affordable health insurance. It is a mistake to just repeal it without anything to take its place.”

  • Jeanne of Jackson, WI, living with fibromyalgia, depression, generalized anxiety disorder and primary biliary cirrhosis

 

ACA patient poll by PatientsLikeMe

2,197 PatientsLikeMe members weighed in on the ACA.

 

“I lost my health insurance because my husband was laid off. Then, I had Medicaid for five months, but that was taken away because my husband made ‘too much’ on unemployment which wasn’t much. This doesn’t take into account our other bills like keeping a roof over our heads. I am in the middle of a disability case. I can’t afford insurance. If I start having seizures again from my [traumatic brain injury] or other issues, I am screwed financially. I don’t have any savings; I can’t work. I am borrowing money from credit cards just to make ends meet.

And to insist that I have insurance (the lowest quote I received was $270 per month) with no financial way of paying and getting fined because of that is an insult. I have been paying into a system that is supposed to help when I need it, but no. This has hurt me and so many others.”

  • Shawn, Lakewood, CO, living with severe traumatic brain injury

Thanks again to all who participated and helped elevate the patient point of view. Let’s keep the dialogue going, together.

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