3 posts tagged “Leonard Florence Center for Living”

“TransFatty Lives”: An interview with ALS filmmaker Patrick O’Brien

Posted May 19th, 2016 by

Meet Patrick O’Brien, a.k.a. “TransFatty,” whom we met through our friend and longtime PatientsLikeMe ALS member Steve Saling (Smooth S) after catching up with him earlier this year.

Patrick is one of Steve’s housemates at the Steve Saling ALS Residence at the Chelsea Jewish Foundation’s Leonard Florence Center for Living and he’s also an award-winning filmmaker.

Back in 2005 when he was diagnosed with ALS, Patrick was making his mark on New York City as a rising filmmaker, DJ, infamous prankster and internet sensation. He called himself “TransFatty,” as a nod to his love of junk food. After his diagnosis, he decided to keep the cameras rolling – on himself. “TransFatty Lives” is the result of a decade of footage that shows his progression with the disease and it’s gone on to win the Audience Choice Awards at both the 2015 Tribeca and Milan Film Festivals.

We visited Patrick last month to chat with him about the film and life in general. Here’s what he had to say.

“TransFatty Lives” is available on iTunes, Amazon, Google Play, and Xbox.

 

 

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“Technology is the cure”: An update with member Steve Saling (SmoothS)

Posted April 5th, 2016 by

Recently, we paid a follow-up visit to ALS member Steve Saling (Smooth S) to see what he’s been up to and talk about future plans.

When we last spoke with him in 2012, Steve was using his expertise as an architect and his interest in technology to spearhead the ALS Residence Initiative (ALSRI), starting with the Steve Saling ALS Residence at the Chelsea Jewish Foundation’s Leonard Florence Center for Living in Chelsea, Mass.

The ALSRI has grown into a series of fully automated residences – now in multiple cities nationwide – that allow pALS the freedom of independent living alongside 24-hour care. And just this past Sunday, the Dapper McDonald ALS Residence officially opened as the second residence at the Leonard Florence Center for Living.

“Until medicine proves otherwise, technology is the cure,” Steve says.

Watch what else he has to say in this interview.

For more on Steve and footage of the ALS Residence, here’s the rest of his story!

 

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Help Patients Live Well with ALS

Posted September 1st, 2011 by

In February, we told you about veteran ALS member SmoothS and his efforts to bring to life the first and only fully automated, skilled service residence specializing in ALS. The Leonard Florence Center for Living opened in November 2010 in Chelsea, Massachusetts, and now SmoothS is working on bringing his groundbreaking concept to other cities.

Want to help this admirable mission? On Sunday, September 25, 2011, the center is hosting a Walk for Living event to raise funds for the Steve Saling ALS Residence and the Slifka MS Residence next door, both of which are part of the center. 100% of donations will go towards these two residences as well as the effort to build additional residences throughout the country through the ALS Residence Initiative (ALSRI).

If you are in the Boston area, you are invited to sign up for Team Smooth Saling ALS Residence. You can also make an online pledge here. Thanks to a generous matching program with The Herb Chambers Companies, every dollar you give will be matched 100%. In addition, all pledges are tax deductible and will help make a profound difference in the future of how care is delivered for people determined to live with ALS.

To learn more, check out the video below, in which SmoothS discusses “the dire need for residential living options for the chronically disabled.”

Learn Why SmoothS Founded the Steve Saling ALS Residence

“ALS does not have to be fatal, and with your help, I will prove it to the world,” says SmoothS. “Until medicine proves otherwise, technology IS the cure. Thank you for your support!”