Posted by admin | July 30, 2012
If you’re living in an Internet-enabled household, chances are you have all or most of your banking information at your fingertips. Can you say the same for your health information? For many, these important records are locked away in filing cabinets or kept at your doctor’s offices.
Despite the fact that patients have a legal right to see and get copies of their medical records, the statistics on access are fairly surprising.
- 41 percent of the public have never asked their doctor for copies of their records
- 81 percent say they’ve never asked to receive their records electronically
That’s why the Department of Health and Human Service’s Office of the National Coordinator for Health Information Technology (ONC) is sponsoring the “What’s in Your Health Record?” Video Contest. The goal is to encourage more patients to ask for copies of their health information and look at new ways to view and track it online. Simply share your story on video (2 minutes or less) – including what you learned from taking a closer look at your records – and you could win one of several cash prizes ranging from $250 to $3,000! All submissions are due by August 20, 2012.
Maybe you’ll find a critical omission in your records, such as a medication allergy. Maybe you’ll find something curious or unexpected that prompts you to ask questions at your next appointment or do research. Or maybe you’ll simply confirm that you’re up to speed on your health status. In any event, having your full health information on hand empowers you and also ensures that your loved ones have all the details they need to help you receive the best care possible.
Ask for your records today and see what you find! And if you’re a PatientsLikeMe member, don’t forget that you can input and monitor hundreds of different lab results – from cholesterol to Vitamin D to PSA levels – on your profile.
Posted by admin | March 27, 2012
What kinds of things do we cover in our monthly newsletters for members? Take a look at the excerpt below from our March edition. Also, in case you didn’t know, anyone – whether a PatientsLikeMe member or not – can view our current and past newsletters in our Newsletter Archive. See what we’ve been up to recently, and if you are member who’s not opted in to the newsletter, sign up today
Flare. Exacerbation. Attack. Acute episode. These are a few of the different terms used to describe a multiple sclerosis (MS) relapse—which can last anywhere from 24 hours to several weeks to even months.
MS isn’t the only condition that has exacerbations, however. This pattern is also common with fibromyalgia (FM), rheumatoid arthritis (RA), psoriasis, IBS, depression and more. Just check out all the threads tagged with either “flares” or “relapses” across the forum.
How do you get through an attack? In a recent discussion in the MS forum, suggestions included lots of rest, watching movies, a pinch of good humor, letting go of guilt, accepting help, pacing yourself, having easy-to-prepare food on hand, talking to your doctor and trusting that “this too shall pass.”
And in the FM forum, one patient has shared her unique trick: a “bad day box” full of uplifting items.
Got your own coping techniques? The forum is all ears.
- Kate, Emma, Liz, Jeanette & Sharry
JOIN THE CONVERSATION
What’s happening in the forum? Check out some of the recent threads about flare-ups below. Then jump in with your own questions and answers.
Need help with something on the site? Visit the PatientsLikeMe Site Help Room for answers from veteran members.
LABS, LABS AND MORE LABS
Things have gotten a lot more lab-tastic at PatientsLikeMe. Thanks to your requests and suggestions, we now offer some 200+ labs to help you monitor your health conditions. Here’s a sampling of some of the new labs and tests you can add to your profile:
Wondering about another lab? Search for it here.